It is where I find myself now, on the threshold between an old familiar state and an unknown future. Cancer no longer lives in my blood, but it lives on in other ways, dominating my identity, my relationships, my work, and my thoughts. I’m done with chemo but I still have my port, which my doctors are waiting to remove until I’m “further out of the woods.” I’m left with the question of how to repatriate myself to the kingdom of the well, and whether I ever fully can. No treatment protocols or discharge instructions can guide this part of my trajectory. The way forward is going to have to be my own.
* * *
—
My first, inadvisable stage of recovery: immolation. I want to torch what still binds me to Will. I want to cauterize my grief. I want to burn down my past and to clear land for new growth. This, I think, is how I will start anew.
To rid the apartment of Will’s ghost, I light bushels of sage. Thick scarves of smoke swirl through the air. I rearrange furniture until old rooms feel new. I collect the framed photographs of us and hide them in the dresser. I stuff the comforter we purchased down the trash chute. When he calls me, I don’t reply. I delete his number.
I want so badly to be a normal twenty-six-year-old. I have no idea of what that entails, so I look to healthy peers for cues. A little less than a month after Will moves out, my friend Stacie, a singer, invites me to hear her perform at the swanky NoMad Hotel. No part of me feels up to socializing, but I force myself to go anyway. I change out of my sweatpants and T-shirt and into a dress—a hip black dress with a high neckline that conceals my port. I fuss with my hair, trying to make it look a bit less post-chemo, more punk-pixie. At the last minute, I invite an old friend to join me, one who knew me long before my sickness. He’s a jazz musician named Jon.
When I arrive at the hotel, Jon is waiting in the lobby. The two of us go way back to band camp, where we met as teenagers. Jon was gangly and awkward then, with a mouth full of braces and baggy, ill-fitting clothes, so shy he bordered on mute. He’s since undergone a transformation. Now, with his thick New Orleanian drawl, virtuosic piano chops, and dapper style, he has the kind of magnetic presence that turns heads and draws everyone in a room. Tall and slim, dressed impeccably in a tailored suit and leather boots, he’s handsome enough to startle me. His skin, a dark honey-brown, looks luminous, and his features—those lips, aquiline nose, and broad shoulders—give him the majestic air of a prince. Jon catches my eye from across the lobby, and as I walk across the room to greet him, I wobble a little under his gaze.
We take the elevator to the second floor and enter a small, cabaret-style club with ornate wallpaper and candlelit tables, and soon Stacie ascends the stage in a red gown. As she croons into the mic, her voice seductively envelops the darkened room. Jon and I are sitting off to the side, on a plush leather couch. It’s been more than a year since we last saw each other, and we have a lot to catch up on. Right away Jon asks about my health and then about Will. When I say that we are no longer together, Jon appears stunned. “Y’all seemed so…solid,” he says.
“It’s for the best,” I say with contrived nonchalance, ignoring the last four weeks spent on my kitchen floor.
“What happened?” he asks. He seems genuinely perplexed.
“The illness took a toll on our relationship,” I say. If I’m going to pick a perpetrator, illness is the easiest one to frame.
It’s the first time I’ve had to explain any of this out loud. I make it sound as if it’s all firmly in the past, as if it needs no untangling. I want to believe this—that moving on from my relationship with Will is going to help me move on from my illness.
“What about you?” I say, eager to change the topic. “Seeing anyone?”
“Also single,” he replies.
I haven’t thought of myself this way yet, as “single.” Though it’s technically true, I still feel in limbo. Single. I mouth it silently. The word feels strange on my tongue.
From the look on Jon’s face it’s also the first time he’s considered me in this light. There’s something happening between us, the air around us charged with possibility. We move on to other topics, but our conversation has taken on an edge and Jon seems to have suddenly reverted to his shy, gawky teenage self. “What’s your favorite sport?” he asks out of nowhere, rocking nervously back and forth on the couch.
“My favorite sport?” I ask. I pause for a moment, then say the first thing that pops into my head: “Basketball, I guess.”
“Wow, me too! That’s another thing we have in common!” Jon says so earnestly that I can’t help but laugh.
Although I’ve known Jon for half my life, it feels as if we are on a blind date. It is awkward. Incredibly so. I wave down the waiter and order a cocktail; when it arrives, I take long swigs. As the evening progresses, I relax a bit, and Jon seems to recover from his shyness. The music turns from jazz to a thumping bass drum, and soon everyone is talking and laughing and getting up to dance. Stacie joins us, as do a handful of girlfriends. They keep elbowing me when Jon’s not looking, egging me on and telling me how it’s time to start putting myself “out there” again. For the first time since leaving the hospital, I’m feeling somewhat human, even attractive.
It’s well past midnight, the latest I’ve been out in ages, but I don’t want the night to end. I want this feeling to follow me home—I need this feeling to follow me. Jon and I linger on the sidewalk. When he kisses my cheek good night, I feel a jolt. Deep inside, some part of me knows I’m in no place to be entertaining the idea of anything more than friendship. It’s a brief moment of awareness about the state of affairs: My personal life is a mess. My body is a mess. I am a mess. My illness has left so much collateral damage in its wake. But to acknowledge that wreckage is to have to contend with it, and I don’t feel strong enough—not yet, not anytime soon. Then the awareness passes, and I am on the other side of it. Maybe things aren’t so bad. Maybe seeing other people is part of moving on. My mind will do anything to avoid a reckoning—it confuses and contradicts itself until I can no longer distinguish what is real from what is not; it convinces me that I’m fine when in fact I couldn’t be further from it.
It isn’t long before Jon and I are talking nearly every night on the phone, for hours at a stretch. He’s on the road with his band, but when he returns to the city a few weeks later, he asks me out on a real date to a comedy show and dinner. Afterward, he walks me home and kisses me—this time, on the mouth. The prospect of starting a new life seems much less terrifying with someone else by my side.
I like everything about Jon. I like how his brain froths with a million ideas and his fingers stampede across the piano keys. I like his galactic ambition, which makes me want to expand the scope of my own. I like that he maintains his limitless drive without caffeine, his equilibrium without alcohol, his sanity without substances. But more than anything, I like the way I feel when I’m around him. Jon treats me like a healthy, normal, capable person—like the wild-maned, mischievous girl I was at thirteen when we first met. He treats me like I’ve never been sick, and even though that doesn’t necessarily align with the way I see myself or feel, it makes me want to play the part. And for a while I do. I play the part so well that I almost trick myself into believing it’s the truth.
Although I can’t admit it to myself, I’m as seduced by Jon as I am by the idea that a new relationship will help expedite my return to the kingdom of the well. Over the next few weeks, I cannot see him often enough. I join him on tour for a couple of days. We wander around strange cities hand in hand, talking for hours and making shy declarations on park benches. We stay out all night with his friends, bopping from jazz club to jazz club until dawn. I never let on how exhausted I am, I never say no, determined to prove I can hang like everyone else.
But back in New York, when we spend our first night together at my apartment, I am as shaky and uncertain as a lamb. It was one thing to be intimate with
Will, who witnessed my body undergo the metamorphosis of illness; it is another thing entirely to be intimate with an outsider, a civilian. As we undress, I feel exposed and insecure. My body reveals a different story to the one I’ve been presenting: I’ve lost nearly twenty pounds from the recent bouts of C. diff, and my ribs protrude through thin flesh. Bruises and needle marks from IV lines, injections, and blood draws cover my arms. Scars whorl my neck and chest from the multiple central venous catheters I’ve had over the years. And my port: I still have that, too.
A round plastic butte beneath knotted scar tissue, the port juts up conspicuously above my right breast, hard to the touch. I don’t know if I should explain why I still have it, or hope Jon somehow won’t notice it in the darkened room. There’s so much he doesn’t know. If things get more serious between us I’ll have to delve into the supremely sexy topics of infertility and chemo-induced menopause, among so many others. The mere prospect of these conversations is enough to contemplate celibacy. Breathe in, breathe out. I don’t know how to do this.
Jon traces a finger from my lips down my neck to the swirl of scars on my chest. Leaning over, he gently touches his lips to my port, then says, “You’re the most beautiful woman I’ve ever met.”
* * *
—
The summer feels like falling in love, not only with Jon, but with the promise of a different life. The only problem is, I’m building this new existence on top of the crumbling foundation of my old one. In late August, after not seeing each other for many weeks, Will and I decide to meet. We grab iced coffees from our favorite breakfast spot across the street and head up to the roof of my building. “I have something I need to tell you,” I say, as we sit down at a picnic table.
“Me too, but you first,” he replies, ever the gentleman.
I came here planning to tell him about Jon. My announcement isn’t coming out of nowhere. Earlier in the summer, I’d warned Will that I was thinking about seeing other people, but he wasn’t dumb—he knew that by “other people” I meant Jon. I’d mentioned that we had been hanging out, and I remember Will saying, “Let me know when you’ve tired of your rebound.” He seemed confident that it was just a temporary fling. The remark infuriated me, in part because Will didn’t seem to mind as much as I’d hoped and in part because so many of his assumptions were right—about my anger at him, about my inability to be on my own. But since then, what started as a rebound had turned into a meaningful relationship and I felt like I owed Will the truth.
I had rehearsed all morning in my head, telling myself that if I could choose the perfect words, if I said everything just right, Will would understand. We would be able to forgive each other and find closure, maybe even lay groundwork for a lasting friendship. But sitting face-to-face with Will, it’s difficult to sustain my denial. My pupils dart from his face to the ground and back again. The truth? Our situation is so much more complicated than what I’ve made it out to be. I want to believe that we are over, yet we remain deeply entangled: Will is still the person listed under “emergency contact” on all of my medical forms, still the first person I want to call when I’m feeling sick or sad or scared. But what I’m about to tell him will make our split total and irrevocable, and for a moment, I don’t know if that’s what I want.
Trying to work up the nerve to speak, I count down in my head—three, two, one—but when I finally form the words, my sensitive, carefully rehearsed explanations evaporate. “You should know that I’m in a relationship and it’s serious,” I say.
Will’s blue eyes splinter. As I watch the shock unfurl across his face, I feel a sense of horror at myself. Denial allows you to operate within a vacuum, without having to consider the implications of your actions on your own life or on others. The hurt on his face nauseates me. But a shameful part of me also feels gratified. On some twisted, subconscious level, I think I’ve been wanting Will to experience a sliver of the pain I felt when he moved out. I want to prove that I am not the needy, powerless sick girl I feel like whenever I’m in his presence. I want him to know that there are others who find me desirable. But even more than that, I want his face in all its pain to validate what I’ve been longing for: proof that he still cares.
Will is silent for a long time. As he regains his composure, his eyes harden. When he finally speaks, he lets me know that after everything he’s sacrificed, I am a traitor and a coward for giving up on us so soon. No one will ever love or take care of me the way he did, he says. Anyway he isn’t buying this new relationship of mine. He warns that once I finally come to my senses, I’ll regret my actions. “You know what’s funny?” Will says. “I came here today to tell you that I’m ready to move back in—to give our relationship another chance. But you’ve made that impossible.”
“How dare you,” I hiss. “You don’t get to leave me when I’m sick only to swoop back into my life just as I’m finally doing okay.”
“Cool, then I guess that’s that. Good luck to you and to my replacement,” Will replies, stretching his arms over his head and yawning in an exaggerated way.
We had both made fatal assumptions: I never believed he would move out when I issued an ultimatum; Will never thought that once he had, I’d move on. But there is no undoing what’s already happened. Neither of us can see past the other’s betrayals. Both of us are hurting but feigning indifference. We’re each too proud to ask for or grant forgiveness.
I stay on the roof for a long time after Will leaves. I am disoriented and unsure of everything: the sky, the pigeons, the blare of sirens in the distance. Most of all, myself. And yet, about this I feel certain: As much as I can’t imagine a life without Will, I can’t imagine a way forward with him either. We both need to free ourselves from codependence—from our old roles as caregiver and patient—but I don’t see us achieving that together, at least not anytime soon. In order for us to forge new identities, we have to go our separate ways.
Even so, I’m stunned by how quickly we’ve transitioned from being a pair, utterly enmeshed and in love, to two strangers siloed in private grief and anger. As we set about disassembling what’s left of us, it feels less like the final stages of a breakup than the beginning of a gutting, protracted divorce. Will returns his copy of the apartment keys. We close our joint bank account and cancel our family cellphone plan. We sort out shared belongings and although we never ask them to, our respective friends and families sort themselves as well.
As for Oscar, we agree on a joint custody arrangement whereby I take care of him during the week and Will has him on weekends. The first several times we do this, Will rings the doorbell and comes inside to retrieve Oscar. Then one day, he notices a pair of men’s size thirteen Air Jordans in the front closet. After that we meet in neutral territory for drop-offs. Soon, Will starts skipping his weekends altogether. It’s too hard, he eventually confesses. He, too, needs to start moving on.
Moving on. It’s a phrase I obsess over: what it means, what it doesn’t, how to do it for real. It seemed so easy at first, too easy, and it’s starting to dawn on me that moving on is a myth—a lie you sell yourself on when your life has become unendurable. It’s the delusion that you can build a barricade between yourself and your past—that you can ignore your pain, that you can bury your great love with a new relationship, that you are among the lucky few who get to skip over the hard work of grieving and healing and rebuilding—and that all this, when it catches up to you, won’t come for blood.
* * *
—
As summer turns to autumn, I begin to feel impatient about my port, the last vestige of cancer that I can touch and see in my body. My medical team insists that it stay in until they are sure I will no longer need it. But I want to be able to wear whatever I please without worrying about people staring at the weird disc bulging below my collarbone; I want to be rid of what feels like the last remaining barrier between me and normalcy. At my next checkup at Sloan Kettering, I bri
ng up the topic of its removal again. After all, it’s been five months since my last day of chemo. I’ve had lots of minor scares since then—resulting in three colonoscopies and three endoscopies, the occasional X-ray, and a bone marrow biopsy following an alarming, mysterious dip in my blood counts—but for the most part, my health has been relatively stable. After discussing it among themselves, my medical team agrees and schedules a date for me to have it removed the following week. It is a vote of confidence in my ability not only to be healthy but to stay healthy. I am elated.
On a Friday in late October, Jon and I head to Sloan Kettering for the procedure. After seeing firsthand how illness can erode a relationship, I’ve tried to distance him from all things medical. I even hide my pillbox whenever he’s staying at my place and wait until he isn’t around to take my medications. I do not expect or ask for much of anything—I ruined my last relationship by needing too much—but hospital rules dictate that someone must be there to bring me home from surgery.
“Here are the face masks and gloves,” I explain to Jon in the waiting room. “Yes, you need to wear them, too—it’s to protect the other patients who have compromised immune systems.” It’s strange to fill him in on customs that are second nature to me. I keep glancing over at him, analyzing his body language, looking for signs that the whole cancer thing freaks him out, but Jon seems unfazed.
A nurse comes over and asks me some preliminary questions before taking me to the operating room. Among the usuals—current medications? new symptoms? pain?—she throws a couple of curveballs: “I see in the notes that you were last hospitalized for C. diff and possible GVHD of the intestines,” she says. “Are you continuing to experience frequent nausea? How many bowel movements are you having a day? What about your stool consistency? Still loose?”
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