In Atlanta she used to read for pleasure. Her tastes ran the gamut from Steinbeck and Hemingway to Grisham and King. Though those types of books were available at the local library, she never checked them out anymore. Instead she used the computers near the reading room, which had free access to the Internet. She searched through clinical studies sponsored by major universities, printing the documents whenever she found something relevant. The files she kept had grown to nearly three inches wide.
On the floor beside her chair she had an assortment of psychological textbooks as well. Expensive, they'd made serious dents in her budget. Yet the hope was always there, and after ordering them, she waited anxiously for them to arrive. This time, she liked to think, she would find something that helped.
Once they came, she would sit for hours, studying the information. With the lamp a steady blaze behind her, she perused the information, things she'd usually read before. Still, she didn't rush. Occasionally she took notes, other times she simply folded the page and highlighted the information. An hour would pass, maybe two, before she'd finally close the book, finished for the night. She'd stand, shaking the stiffness from her joints. After bringing the books to her small desk in the living room, she would check on Kyle, then head back outside.
The gravel walkway led to a path through the trees, eventually to a broken fence that lined her property. She and Kyle would wander that way during the day, she walked it alone at night. Strange noises would filter from everywhere: from above came the screech of an owl; over there, a rustle through the underbrush; off to the side, a skitter along a branch. Coastal breezes moved the leaves, a sound similar to that of the ocean; moonlight drifted in and out. But the path was straight, she knew it well. Past the fence, the forest pressed in around her. More sounds, less light, but still she moved forward. Eventually the darkness became almost stifling. By then she could hear the water; the Chowan River was close. Another grove of trees, a quick turn to the right, and all of a sudden it was as if the world had unfolded itself before her. The river, wide and slow moving, was finally visible. Powerful, eternal, as black as time. She would cross her arms and gaze at it, taking it in, letting the calm it inspired wash over her. She would stay a few minutes, seldom longer, since Kyle was still in the house.
Then she'd sigh and turn from the river, knowing it was time to go.
Chapter 2
In the car, still ahead of the storm, Denise remembered sitting with the doctor in his office earlier that day while he read the results from the report on Kyle.
The child is male, four years eight months old at the time of testing. . . . Kyle is a handsome child with no obvious physical deficiencies in the head or facial area. . . . No recorded head trauma . . . pregnancy was described by mother as normal. . . .
The doctor continued for the next few minutes, outlining the specific results from various tests, until finally reaching the conclusion.
Though IQ falls within the normal range, child is severely delayed in both receptive and expressive language . . . probably central auditory processing disorder (CAPD), though cause can't be determined . . . overall language ability estimated to be that of a twenty-four-month-old. . . . Eventual language and learning capabilities unknown at this time. . . .
Barely that of a toddler, she couldn't help but think.
When the doctor was finished, he set the report aside and looked at Denise sympathetically. "In other words," he said, talking slowly as if she hadn't understood what he'd just read, "Kyle has problems with language. For some reason--we're not sure why--Kyle isn't able to speak at a level appropriate for his age, even though his IQ is normal. Nor is he able to understand language equal to the level of other four-year-olds."
"I know."
The assurance of her response caught him off guard. To Denise it seemed as if he'd expected either an argument, an excuse, or a predictable series of questions. When he realized she wasn't going to say anything else, he cleared his throat.
"There's a note here that says you've had him evaluated elsewhere."
Denise nodded. "I have."
He shuffled through the papers. "The reports aren't in his file."
"I didn't give them to you."
His eyebrows rose slightly. "Why?"
She reached for her purse and set it in her lap, thinking. Finally: "May I be frank?"
He studied her for a moment before leaning back in his chair. "Please."
She glanced at Kyle before facing the doctor again. "Kyle has been misdiagnosed again and again over the past two years--everything from deafness to autism to pervasive development disorder to ADD. In time, none of those things turned out to be accurate. Do you know how hard it is for a parent to hear those things about her child, to believe them for months, to learn everything about them and finally accept them, before being told they were in error?"
The doctor didn't answer. Denise met his eyes and held them before going on.
"I know Kyle has problems with language, and believe me, I've read all about auditory processing problems. In all honesty, I've probably read as much about it as you have. Despite that, I wanted his language skills tested by an independent source so that I could know specifically where he needed help. In the real world, he has to talk to more people than just me."
"So . . . none of this is news to you."
Denise shook her head. "No, it's not."
"Do you have him in a program now?"
"I work with him at home."
He paused. "Does he see a speech or behavioral specialist, anyone who's worked with children like him before?"
"No. He went to therapy three times a week for over a year, but it didn't seem to help. He continued to fall further behind, so I pulled him out last October. Now it's just me."
"I see." It was obvious by the way he said it that he didn't agree with her decision.
Her eyes narrowed. "You have to understand--even though this evaluation shows Kyle at the level of a two-year-old, that's an improvement from where he once was. Before he worked with me, he'd never shown any improvement at all."
Driving along the highway three hours later, Denise thought about Brett Cosgrove, Kyle's father. He was the type of man who attracted attention, the kind who'd always caught her eye: tall and thin with dark eyes and ebony hair. She'd seen him at a party, surrounded by people, obviously used to being the center of attention. She was twenty-three at the time, single, in her second year of teaching. She asked her friend Susan who he was: she was told that Brett was in town for a few weeks, working for an investment banking firm whose name Denise had since forgotten. It didn't matter that he was from out of town. She glanced his way, he glanced back, and their eyes kept meeting for the next forty minutes before he finally came over and said hello.
Who can explain what happened next? Hormones? Loneliness? The mood of the hour? Either way, they left the party a little after eleven, had drinks in the hotel bar while entertaining each other with snappy anecdotes, flirted with an eye toward what might happen next, and ended up in bed. It was the first and last time she ever saw him. He went back to New York, back to his own life. Back, she suspected even then, to a girlfriend he'd neglected to mention. And she went back to her life.
At the time, it didn't seem to mean much; a month later, while sitting on the bathroom floor one Tuesday morning, her arm around the commode, it meant a whole lot more. She went to the doctor, who confirmed what she already knew.
She was pregnant.
She called Brett on the phone, reached his answering machine, and left a message to call; three days later he finally did. He listened, then sighed with what sounded like exasperation. He offered to pay for the abortion. As a Catholic, she said it wasn't going to happen. Angered, he questioned why this had happened. I think you already know the answer to that, she answered. He asked if she was sure the baby was his. She closed her eyes, calming herself, not rising to the bait. Yes, it was his. Again he offered to pay for an abortion. Again she said no. What did she want
him to do? he asked her. She said she didn't want anything, she just thought he should know. He would fight if she demanded child support payments, he said. She said she didn't expect that from him, but she needed to know if he wanted to be involved in the child's life. She listened to the sound of his breaths on the other end. No, he finally said. He was engaged to someone else.
She'd never spoken to him again.
In truth, it was easier to defend Kyle to a doctor than it was to herself. In truth, she was more worried than she let on. Even though he'd improved, the language ability of a two-year-old wasn't much to cheer about. Kyle would be five in October.
Still, she refused to give up on him. She would never give up, even though working with him was the hardest thing she'd ever done. Not only did she do the regular things--make his meals, take him to parks, play with him in the living room, show him new places--but she also drilled him on the mechanics of speech for four hours a day, six days a week. His progression, though undeniable since she'd begun with him, was hardly linear. Some days he said everything she asked him to, some days he didn't. Some days he could comprehend new things easily, other days he seemed further behind than ever. Most of the time he could answer "what" and "where" type questions; "how" and "why" questions were still incomprehensible. As for conversation, the flow of reason between two individuals, it was still nothing but a scientific hypothesis, far beyond his ability.
Yesterday they'd spent the afternoon on the banks of the Chowan River. He enjoyed watching the boats as they cut through the water on the way to Batchelor Bay, and it provided a change from his normal routine. Usually, when they worked, he was strapped in a chair in the living room. The chair helped him focus.
She'd picked a beautiful spot. Mockernut hickory trees lined the banks, Christmas ferns were more common than mosquitoes. They were sitting in a clover patch, just the two of them. Kyle was staring at the water. Denise carefully logged his progress in a notebook and finished jotting down the latest information. Without looking up, she asked: "Do you see any boats, sweetie?"
Kyle didn't answer. Instead he lifted a tiny jet in the air, pretending to make it fly. One eye was closed, the other was focused on the toy in his hand.
"Kyle, honey, do you see any boats?"
He made a tiny, rushing sound with his throat, the sounds of a make-believe engine surging in throttle. He wasn't paying attention to her.
She looked out over the water. No boats in sight. She reached over and touched his hand, making sure she had his attention.
"Kyle? Say, 'I don't see any boats.' "
"Airplane." (Owpwane)
"I know it's an airplane. Say, 'I don't see any boats.' "
He raised the toy a little higher, one eye still focused on it. After a moment he spoke again.
"Jet airplane." (Jet owpwane)
"Yes, you're holding an airplane."
"Jet airplane." (Jet owpwane)
She sighed. "Yes, a jet airplane."
"Owpwane."
She looked at his face, so perfect, so beautiful, so normal looking. She used her finger to turn his face toward hers.
"Even though we're outside, we still have to work, okay? . . . You have to say what I tell you to, or we go back to the living room, to your chair. You don't want to do that, do you?"
Kyle didn't like his chair. Once strapped in, he couldn't get away, and no child--Kyle included--enjoyed something like that. Still, Kyle moved the toy airplane back and forth with measured concentration, keeping it aligned with an imaginary horizon.
Denise tried again.
"Say, 'I don't see any boats.' "
Nothing.
She pulled a tiny piece of candy from her coat pocket.
Kyle saw it and reached for it. She kept it out of his grasp.
"Kyle? Say, 'I don't see any boats.' "
It was like pulling teeth, but the words finally came out.
He whispered, "I don't see any boats." (Duh see a-ee boat)
Denise leaned in and kissed him, then gave him the candy. "That's right, honey, that's right. Good talking! You're such a good talker!"
Kyle took in her praise while he ate the candy, then focused on the toy again.
Denise jotted his words in her notebook and went on with the lesson. She glanced upward, thinking of something he hadn't said that day.
"Kyle, say, 'The sky is blue.' "
After a beat:
"Owpwane."
In the car again, now twenty minutes from home. In the back she heard Kyle fidget in his seat, and she glanced in the rearview mirror. The sounds in the car soon quieted, and she was careful not to make any noise until she was sure he was sleeping again.
Kyle.
Yesterday was typical of her life with him. A step forward, a step backward, two steps to the side, always a struggle. He was better than he once had been, yet he was still too far behind. Would he ever catch up?
Outside, dark clouds spanned the sky above, rain fell steadily. In the backseat Kyle was dreaming, his eyelids twitching. She wondered what his dreams were like. Were they devoid of sound, a silent film running through his head, nothing more than pictures of rocket ships and jets blazing across the sky? Or did he dream using the few words he knew? She didn't know. Sometimes, when she sat with him as he lay sleeping in his bed, she liked to imagine that in his dreams he lived in a world where everyone understood him, where the language was real--maybe not English, but something that made sense to him. She hoped he dreamed of playing with other children, children who responded to him, children who didn't shy away because he didn't speak. In his dreams, she hoped he was happy. God could at least do that much, couldn't he?
Now, driving along a quiet highway, she was alone. With Kyle in the back, she was still alone. She hadn't chosen this life; it was the only life offered to her. It could have been worse, of course, and she did her best to keep this perspective. But most of the time, it wasn't easy.
Would Kyle have had these problems if his father were around? In her heart she wasn't exactly sure, but she didn't want to think so. She'd once asked one of Kyle's doctors about it, and he'd said he didn't know. An honest answer--one that she'd expected--but she'd had trouble sleeping for a week afterward. Because the doctor hadn't simply dismissed the notion, it took root in her mind. Had she somehow been responsible for all of Kyle's problems? Thinking this way had led to other questions as well. If not the lack of a father, had it been something she'd done while pregnant? Had she eaten the wrong food, had she rested enough? Should she have taken more vitamins? Or fewer? Had she read to him enough as an infant? Had she ignored him when he'd needed her most? The possible answers to those questions were painful to consider, and through sheer force of will she pushed them from her mind. But sometimes late at night the questions would come creeping back. Like kudzu spreading through the forests, they were impossible to keep at bay forever.
Was all of this somehow her fault?
At moments like those, she would slip down the hall toward Kyle's bedroom and watch him while he slept. He slept with a white blanket curled around his head, small toys in his hand. She would stare at him and feel sorrow in her heart, yet she would also feel joy. Once, while still living in Atlanta, someone had asked her if she would have had Kyle if she had known what lay in store for both of them. "Of course," she'd answered quickly, just as she was supposed to. And deep down she knew she meant it. Despite his problems, she viewed Kyle as a blessing. If she conceived it in terms of pros and cons, the list of pros was not only longer, but much more meaningful.
But because of his problems, she not only loved him, but felt the need to protect him. There were times each and every day when she wanted to come to his defense, to make excuses for him, to make others understand that though he looked normal, something was wired wrong in his brain. Most of the time, however, she didn't. She decided to let others make their own judgments about him. If they didn't understand, if they didn't give him a chance, then it was their loss. For despite all his diffi
culties, Kyle was a wonderful child. He didn't hurt other children; he never bit them or screamed at them or pinched them, he never took their toys, he shared his own even when he didn't want to. He was a sweet child, the sweetest she'd ever known, and when he smiled . . . God he was just so beautiful. She would smile back and he'd keep smiling, and for a split second she'd think that everything was okay. She'd tell him she loved him, and the smile would grow wider, but because he couldn't talk well, she sometimes felt as if she were the only one who noticed how wonderful he actually was. Instead Kyle would sit alone in the sandbox and play with his trucks while other children ignored him.
She worried about him all the time, and though all mothers worried about their children, she knew it wasn't the same. Sometimes she wished she knew someone else who had a child like Kyle. At least then someone would understand. At least then she'd have someone to talk to, to compare notes with, to offer a shoulder when she needed to cry. Did other mothers wake up every day and wonder whether their child would ever have a friend? Any friend? Ever? Did other mothers wonder whether their children would go to a regular school or play sports or go to the prom? Did other mothers watch as their children were ostracized, not only by other children, but by other parents as well? Did their worries go on every minute of every day, seemingly without an end in sight?
Her thoughts followed this familiar track as she guided the old Datsun onto now recognizable roads. She was ten minutes away. Round the next curve, cross the bridge toward Edenton, then left on Charity Road. Another mile after that and she'd be home. The rain continued to fall, and the asphalt was black and shiny. The headlights shone into the distance, reflecting the rain, diamonds falling from the evening sky. She was driving through a nameless swamp, one of dozens in the low country fed by the waters of the Albemarle Sound. Few people lived here, and those who did were seldom seen. There were no other cars on the highway. Rounding the curve at nearly sixty miles an hour, she saw it standing in the road, less than forty yards away.
A doe, fully grown, facing the oncoming headlights, frozen by uncertainty.
They were going too fast to stop, but instinct prevailed and Denise slammed on the brakes. She heard the screeching of tires, felt the tires lose their grip on the rain-slicked surface, felt the momentum forcing the car forward. Still, the doe did not move. Denise could see its eyes, two yellow marbles, gleaming in the darkness. She was going to hit it. Denise heard herself scream as she turned the wheel hard, the front tires sliding, then somehow responding. The car began to move diagonally across the road, missing the deer by a foot. Too late to matter, the deer finally broke from its trance and darted away safely, without looking back.
The Rescue Page 2