Patient Zero and the Making of the AIDS Epidemic

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Patient Zero and the Making of the AIDS Epidemic Page 54

by Richard A. McKay


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  they wouldn’t publish our writing, you know, that I wanted to do what-

  ever I could, and I regret it. I really regret it.”91

  From mid- 1982 onward, these stories circulated orally— through face-

  to- face interactions and telephone conversations— and more traceably in

  print.92 They bore strong similarities to fears that traveled easily in much

  older epidemics. One fl ash point emerged in San Francisco between

  August and December 1982, as the cluster study directed attention to

  the possibility of a sexually transmissible agent and as the city’s newly

  founded Kaposi’s Sarcoma Foundation intensifi ed its public- education

  drive. Later, as fears mounted alongside rising case numbers, echoes of

  these stories sounded throughout 1983, with the aforementioned exam-

  ples in Village Voice and Time in the spring and summer and others in

  New York and San Francisco later in the autumn. As the author of one

  letter to the New York Native wrote in October 1983: “There is a rumor

  abroad that some known victims of AIDS, a deadly disease apparently

  transmitted through sexual contact, continue to engage in promiscuous

  sex with uninfected strangers, apparently on the theories (a) that some-

  one else gave it to them and they’re going to repay the favor (never mind

  that no uninfected person gave AIDS to anyone) and/or (b) they’re un-

  der a death sentence so don’t give a damn what happens to anybody else

  but need to live live live until they die.”93 Shilts also wrote a newspaper

  article in November 1983 about Selma Dritz’s efforts to ban people with

  AIDS from baths. He quoted the public health offi cial as saying, “We

  kept hearing through informal community channels that some (AIDS

  patients) were going to the baths.” She continued, employing similar ex-

  planations for this behavior: “We can understand that they’re trying to

  get everything they can when they have a life- threatening disease, but

  they shouldn’t be taking other people down with them.”94

  In Canada, Gaétan Dugas would fi nd himself surrounded by rumors

  91. Richard Berkowitz, interview with author, New York City, April 25, 2008, record-

  ing C1491/24, tape 1, side B, BLSA.

  92. Andrew Holleran parodied some of these telephone rumors in his semifi ctionalized

  “Journal of the Plague Year,” Christopher Street, November 1982, 15– 21. Marcus Conant

  recalled phoning Alvin Friedman- Kien, for example, to discuss Dugas’s local attendance

  of San Francisco bathhouses; Conant, “Founding the KS Clinic,” 167.

  93. L. Craig S[c]hoonmaker, “Local ’Phobe,” letter to the editor, New York Native,

  October 24, 1983.

  94. Randy Shilts, “Some AIDS Patients Still Going to the Baths,” San Francisco

  Chronicle, November 15, 1983, 4; emphasis added.

  Locating Gaétan Dugas’s Views 319

  in Vancouver in mid- 1983. In addition to focusing on this Canadian city

  in Band, Shilts referred to “a gay newspaper in Edmonton” which had,

  by March 1983, “written a story about an airline steward with AIDS who

  was popping into Alberta and screwing people in the bathhouses.”95

  Moving more or less chronologically, it is worth examining some of these

  examples in greater detail to evaluate their reliability, from the San

  Francisco fl ash point fl aring in the second half of 1982 to the available

  evidence for Vancouver. Before doing so, however, it is necessary to ad-

  dress the example Shilts cited in the Edmonton gay newspaper.

  Edmonton

  Fine Print, the main newspaper serving Edmonton’s lesbian and gay com-

  munity during this time, had a short- lived existence, with seven issues

  published between February and October 1983. A review of the articles

  and correspondence during this period reveals some of the contradictory

  responses of community members as they began to pay more attention

  to an epidemic which had appeared, until then, to be confi ned to other

  cities. Jokes about KS and herpes being the marks of social outcasts and

  skeptical questions wondering whether AIDS might be a “grotesque ex-

  termination plot” would give way to efforts to provide information about

  the condition and raise money to fi ght the epidemic.96 The city would not

  see a reported case until July 1984, and some residents believed Edmon-

  ton was too remote and cold to be affected.97 Fears about the risks be-

  falling “innocent individuals” in Edmonton would be at the heart of the

  story Shilts cited, though the item in question was not a news article.

  In July 1983, a reader’s letter was published in which he shared a “mat-

  ter of great concern” told to him the previous month, concerning an in-

  cident that had taken place in May. Like Defoe’s fi ctional narrator from

  A Journal of the Plague Year, he prefaced a dark story of disease trans-

  mission with the disclaimer that it might not be true. Indeed, the letter’s

  95. Shilts focuses on the Vancouver rumors in Band, 251, and refers to the Edmonton

  newspaper “story” in Band, 247.

  96. For example, Grayson Sherman, “Oh Come All Ye Faithful,” Fine Print, February

  1983, 17; Brian Chittock, “AIDS: A Case of Homophobia,” Fine Print, April 1983, 10– 11;

  “GATE Sponsors Informational Program on AIDS,” Fine Print, May 1983, 21; advertise-

  ment for July 18th Calgary AIDS Benefi t, Fine Print, July 1983, 11.

  97. Testimony of Michael Phair to the Krever commission on April 21, 1994, Verbatim

  Transcripts of Commission, 34:6810.

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  author expressed hope that the matter was not “just a rumour”— despite

  the suspicious sign that the story related to a friend of friends of friends,

  and despite acknowledging that “serious consequences” might occur if

  he was repeating an untrue tale. Yet the author felt compelled to risk

  this possibility to share his “anger and outrage” at the incident that his

  friends had related to him: “Friends of theirs had an out of town visitor

  from Vancouver stay over this past Victoria Day weekend. He promptly

  told them that he was a victim of and did have AIDS. Having a friend tell

  you that he or she has AIDS would be diffi cult for anyone; however this

  friend also told them that as someone had given him the disease it was

  not going to prevent him from enjoying life. An admirable attitude for

  anyone who is a victim of this presently incurable disease.” Having built

  dramatic tension, the writer rapidly switched gears: “At this point my

  heart went out to him, until I was told that he went out to the bars and

  picked someone up; and also did more than have this fellow just spend

  the night.” The author was outraged that this man may have “knowingly

  passed on his unfortunate illness to an innocent victim [who might] pass

  it on to others unknowingly, and so on.” Emphasizing the dangers posed

  by such a malicious infected outsider, he continued, “Right here, right

  now might well be the beginnings of an epidemic some months or short

  years in the future. From most reports this horrible disease is showing

  little signs of abating and one reason may be because a
ssholes like this

  guy needed to get his rocks off.” The writer invited readers to share his

  view that “this person has a disgusting, sickening attitude, one that may

  indeed destroy many [people’s] lives. Just because someone ‘gave’ AIDS

  to him.” He ended his letter bleakly, asking, “Can we survive attitudes

  like these from within our own community?”98

  Although the letter’s contents provide a weak substantiation of

  Shilts’s claim— a man with AIDS from Vancouver, perhaps Dugas, may

  have had a (possibly unprotected) sexual contact in Edmonton— the ex-

  ample is more useful in other ways. At a time when concern about AIDS

  was rising, and when little information was known locally in the ab-

  sence of AIDS cases, one can interpret the author’s decision to share the

  rumor as fulfi lling several important functions. First, by narrating his

  story, he could make sense of how a distant threat might affect his com-

  98. Keith Dennis, “Alberta Beef,” letter to the editor, Fine Print, July 1983, 2, 22. A re-

  view of all issues published during this journal’s run from February to October 1983 re-

  vealed this letter to be the sole item resembling Shilts’s cited source.

  Locating Gaétan Dugas’s Views 321

  munity: through the actions of a conscienceless stranger and not, per-

  haps, through the existing travel patterns and contacts of local residents

  that might link them sexually to other, more affected areas.99 Second,

  in a time of confusion, sending a letter allowed the man to channel his

  uncertainty into action.100 Third, some experimental psychologists hy-

  pothesize that by telling and listening to emotionally arousing stories,

  individuals trigger the release of endorphins that increase their ability

  to withstand pain and also increase their sense of communal bonding.101

  The letter writer, like others before and after him who would share sto-

  ries of whose veracity they could not be certain, could feel better by do-

  ing so. Not only might he gain some physical and psychological relief,

  but by boldly asserting his moral expectations for shared behavior, he

  might also feel more of a sense of closeness with his fellow community

  members.

  San Francisco

  A sample of articles and letters appearing between January and Decem-

  ber 1982 in the Bay Area Reporter ( BAR), one of San Francisco’s most

  widely read and sensational gay newspapers of the time, illuminates a

  similar range of community responses to the emerging syndrome: initial

  dark humor giving way to uncertainty, suspicion, and fear. During this

  year the city would see its total reported caseload rise to nearly 120, with

  initially infrequent notices about KS giving rise to sustained coverage.102

  In April 1982, Arthur Evans, a gay activist who frequently wrote to the

  editor under the pseudonym “The Red Queen,” submitted a tongue- in-

  cheek letter, poking fun at the newspaper’s recent multipart feature arti-

  cle about the Cauldron, an S/M (sadomasochism) club in the city’s South

  99. See Diane Goldstein’s discussion on the prevalence of “stranger danger” in lay be-

  liefs about AIDS, in D. Goldstein, Once Upon a Virus, 159– 62.

  100. For a compelling example of a historian making sense of the appearance of similar

  rumors in diverse locations, see Wim Klooster, “Slave Revolts, Royal Justice, and a Ubiq-

  uitous Rumor in the Age of Revolutions,” William and Mary Quarterly, 3rd ser., 71, no. 3

  (2014): 401– 24.

  101. R. I. M. Dunbar et al., “Emotional Arousal When Watching Drama Increases

  Pain Threshold and Social Bonding,” Royal Society Open Science 3 (September 21, 2016):

  doi: 10.1098/rsos.160288.

  102. Michelle Cochrane, When AIDS Began: San Francisco and the Making of an Epi-

  demic (London: Routledge, 2004), 149.

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  of Market area. He explained that he had been inspired to set up a sep-

  arate venue, named the Hanky, specializing in “snot.” Evans ended the

  letter with a cryptic reference to CDC investigators: “They want to ask

  me some questions about a Mr. Kaposi.”103 Known for writing letters

  that criticized members of the city’s leather and S/M communities for

  their approaches to sexual expression, it seems that the Red Queen was

  also impugning them with an association with the emerging epidemic of

  KS and pneumonia.104 Some members of this subcommunity responded

  defi antly in kind: advertisements featuring a shirtless, mustached, and

  muscular man in full leather gear appeared several times throughout the

  fi rst half of 1982, boldly promoting “black plague wednesdays” at

  the Boot Camp Club near 8th and Bryant.105

  Over the next few weeks the tone shifted, from one of humorous word-

  play to more anxious expressions. In May, one prominent member of the

  Sisters of Perpetual Indulgence, a group of gay men working to promote

  gay men’s sexual health, offered “a sick joke” to the editor, wonder-

  ing “how Doctor Kaposi feels when he sees his name in blights.”106 On

  June 24, a brief reference to the cluster study appeared with the head-

  line “Infections suspected in KS, Pneumonia.” A week later, an anony-

  mous correspondent offered “some unanswered questions that need to

  be answered” before he could believe that “gays brought this awful dis-

  ease upon ourselves by our sinful lifestyles and drugs we consume as

  a culture.” The writer described how “the so- called Legionnaires Dis-

  ease” had spread through a ventilation system, related stories of the US

  government’s and CIA’s secret chemical and biological weapons testing,

  and cited Fidel Castro’s recent fears of American attacks using “deadly

  viruses and bacteria weapons.” After he noticed that several local bath-

  103. The Red Queen, “S’not What You Think,” letter to the editor, BAR, April 29,

  1982, 8. Evans’s reference to “snot,” or nasal mucus, directly parodied the Cauldron’s em-

  phasis on “piss,” or urine, which was highlighted in Gary Pedler, “The Caldron Part II: In-

  terview with the Owners,” BAR, April 22, 1982, 14- 16.

  104. Hank Trout, “S & M Distinctions,” letter to the editor, BAR, July 1, 1982, 8. For

  the early perceived associations between the city’s leather community and AIDS, see

  Gayle Rubin, “Elegy for the Valley of Kings: AIDS and the Leather Community in San

  Francisco, 1981– 1996,” in In Changing Times: Gay Men and Lesbians Encounter HIV/

  AIDS, ed. Martin P. Levine, Peter M. Nardi, and John H. Gagnon (Chicago: University of

  Chicago Press, 1997), 101– 44.

  105. See, for example, BAR, February 25, 1982, 25; June 10, 1982, 29; and July 8, 1982, 30.

  106. Sister Boom Boom, “Sis Boom Bah,” letter to the editor, BAR, May 20, 1982, 6.

  Locating Gaétan Dugas’s Views 323

  houses kept their windows closed, he explained that “certain things be-

  gan to connect. If the C.I.A. had developed a virus that could break

  down the immunity system of the body, what unwanted or undesired

  group of people would they test it on? . . . Call me crazy, but fi rst answer

  my questions!”107

  By the end of the summer, we
ekly reports on the “gay cancer” had

  made KS a common term for the newspaper’s readers. Considerable un-

  certainty remained, however, as to what caused the cancer and whether it

  was linked to an underlying condition of suppressed immunity.108 When

  Marcus Conant spoke to an overfl owing crowd at a KS information fo-

  rum held at the MCC Church in early August, his remarks were summa-

  rized for BAR’s readers: “The doctors don’t know what causes certain

  Gay men to have lower than normal immune levels; they don’t know how

  Gay men catch the diseases, and they don’t know how to cure them.”

  While the newspaper granted that “Conant said the ‘best guess’ on Ka-

  posi’s is that it’s caused by ‘some transmissible agent,’” it noted that lack

  of funds prevented further investigation. Accompanying this news item

  was an article about Acquired Immune Defi ciency (AID), prepared by

  the Gay Men’s Health Crisis of New York. In answer to the question of

  whether the immune defi ciency could be treated, it noted that there was

  “no certain treatment for AID [but] there are treatments for the cancers

  and infections to which AID predisposes.”109

  Later that month, Paul Dague, a therapist counseling patients at the

  University of California– San Francisco (UCSF) KS clinic, received a

  KS diagnosis himself. A journalist described how “the rumor spread

  through the Gay community faster than the disease itself: A doctor who

  was treating Gay victims of KS now has it!” In an interview, Dague dis-

  missed any possibilities of contagion through casual contact, empha-

  sizing that he only spoke with patients and did not touch them. To his

  mind, the evidence for the cause of his KS was “inconclusive.” While he

  echoed the remarks of his physician, Marcus Conant, that KS was “prob-

  107. Name Withheld on Request, “KS Puzzles,” letter to the editor, BAR, July 1,

  1982, 8.

  108. See, for example, Richard B. Pearce, “Gay Compromise Syndrome: The Battle

  Widens,” BAR, July 8, 1982, 15; Gay Men’s Health Crisis, “Another Epidemic: Acquired

  Immune Defi ciency,” BAR, August 5, 1982, 1, 5; “Virus Linked to Cancer Outbreak in

  Gay Community,” BAR, August 26, 1982, 4.

  109. Gay Men’s Health Crisis, “Another Epidemic,” 5.

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  ably sexually transmitted,” his interviewer immediately countered with

 

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