by Rosie Lewis
She stared at me blankly, so I decided not to make an issue of it. Stuffing the clothes into a carrier bag, I dropped it onto the floor. ‘Do you mind if I give your hair a wash, Phoebe? I won’t do anything else, just your hair. Is that OK?’
‘NOOO!’ she howled. ‘I hate having my hair washed.’
‘Yes, I can see that. But you need to have it done.’
My tone made it clear that refusing was not an option. Surprisingly, she sat motionless as I lifted the shower head and dampened her hair down, running my fingers over the stubby ends. It really was frizzy, almost Afro-style in texture. I reached up and unlocked a cabinet fixed up high on the wall and retrieved the shampoo, squeezing a generous blob into my palms. After rinsing the suds away I smoothed in some conditioner, trying to massage it all the way through to her scalp. The tightness of her hair seemed to loosen so I lavished another handful through, rubbing it in with my fingertips.
Phoebe wriggled away, whimpering.
‘Keep still or you’ll get conditioner in your eyes,’ I said. As I massaged and rubbed her scalp, the texture softened beneath my fingers. Strangely, the tendrils seemed to be extending, like the hair of one of those dolls that Emily had years ago, where the style could be altered by winding a ponytail in and out of the head. It was then I realised her hair wasn’t as roughly chopped as I had first thought; it was actually matted.
‘Owwww!’ Phoebe began to howl.
‘It’s alright, you’re done now,’ I soothed. I wasn’t surprised she’d been moaning – it must have been very uncomfortable. There were still balls of matted hair clumped to her scalp and I was itching to sort them out but I decided to rinse her off and tackle it again next time. Leaving Phoebe to dry herself, I grabbed the bag of soiled clothes and went downstairs to prepare breakfast, wondering why on earth any mother would leave her daughter’s hair to get into such a bad state.
Phoebe managed to eat a few mouthfuls of porridge before clanking her spoon onto the table. Leaning forward to rest her elbows, she cupped her chin in her hands and watched the rest of us tuck into our chocolate pancakes with a look of sickly distaste on her face. She really seemed to derive no pleasure from eating, or anything else, come to think of it. Despite her middle-class background she looked malnourished, her cheeks the colour of frozen pastry and her eyes dull and lifeless. She had that look that children seem to get the day before a cold comes out, where their eyes just don’t seem right.
After clearing away the breakfast things I packed up my manicure set and hairdressing scissors and told Phoebe we were going to visit a friend of mine who needed some help. The friend was actually an ex-neighbour who was elderly and unable to get out and about as she once did. Apart from one son there was no one else to help her so I paid her a call once a week to give her hair a wash and tidy the house. Once or twice over the last couple of years I had made the suggestion that her son might consider running some of the errands himself but each time I broached the subject he shuddered, declaring old age made him nauseous.
Today Mary had requested a haircut and foot manicure, something I wasn’t looking forward to with any relish, but it was a relief to escape the gloomy confines of the house. Before we left I suggested that Phoebe choose a book to take with her and I was surprised to find what an interest she showed in selecting one. While she scanned our bookshelves there were no strange whirly arm movements or whooping noises; she just ran her fingers across the spines, pulling one out every now and again to examine the cover. I was also a bit taken aback by the one she finally settled on: Roald Dahl’s The Giraffe and the Pelly and Me. I wasn’t sure she’d be able to manage it and was wondering whether she chose it for Quentin Blake’s colourful illustrations alone, when she read the blurb out loud, inflecting parts and showing real expression. Amazed, I chastised myself for jumping to conclusions and underestimating her.
With an interest in reading, I hoped that Phoebe would behave and let me get on with sorting Mary out. And I was grateful to find that she did. Apart from exclaiming when we first arrived that the house ‘stinks’ and that Mary’s toenails looked like ‘dirty old twigs’ she simply sat reading her book and looking up occasionally, watching us with interest. It was a joy to witness her animated face as she read. There were lots of smiles interspersed with gasps and sudden bouts of giggles. I made a mental note to take her to the library so that she could choose from a wider range of books.
Soon after we arrived back home I suggested a walk to the local shop. ‘You could have a look around and see if anything takes your fancy for lunch,’ I said, hopeful that if I gave Phoebe a small trolley she might gain a bit more enthusiasm for food, the way children often do when they feel involved.
‘Hwah.’ Phoebe instantly gagged at the thought.
‘Alright, not to worry,’ I soothed, assuming all the emotion had upset her system. ‘I’ve got to get some milk anyway.’
Jamie looked revolted by the sounds Phoebe was making, watching her with his lip curled in disgust.
It was a lovely spring day with few clouds in the sky. I closed my eyes briefly as Phoebe skipped ahead, tilting my face to the warm sun. The tenseness I was carrying in my shoulders eased slightly as I enjoyed the fresh breeze rippling over my skin. It was such a relief to be out of the house; it had been only half an hour or so, but I felt as if I’d been cooped up for days.
Lowering my face again I saw that Phoebe was spinning her hands either side of her hips and walking with a strange gait, something she hadn’t been doing indoors. She began muttering and every so often broke into a snarl, shaking her fist at passing traffic like a confused old drunkard. It really looked most odd and I noticed a few drivers slow down, frowning. One, a young lad driving a white van, did a double take, no doubt surprised to be on the receiving end of aggressive jeers simply for driving inoffensively down the road.
Phoebe reached the mini-store first. To her credit, she obediently waited outside the entrance for me to catch up. Facing the glass doors, she stood with her legs a foot apart, gesticulating wildly at her reflection. Several customers gave her a wide berth as they left the shop, trying to avoid her flaying arms.
As I caught up they stared at me in disapproving puzzlement, as if I’d allowed my eight-year-old daughter access to magic mushrooms or some other hallucinogenic that might explain her strange conduct.
‘Come on,’ I said, cupping her elbow and guiding her into the shop.
‘Ow! Ouch!’ she yelled, struggling as if I’d wrestled her into an arm lock. Embarrassed by stares from several other customers, I released my hold, hoping she wouldn’t run off. Fortunately her path was blocked by a young woman who rounded the corner from the next aisle, pushing a pram in front of her.
‘Ah, a baby!’ Phoebe sounded delighted. ‘Can I say hello, please?’ She leaned into me, her manner suddenly coquettish.
‘Yes, nicely then, if that’s OK?’
The baby’s mother nodded and smiled. ‘Of course,’ she said, although her expression said otherwise.
‘What is its name?’ Phoebe asked sweetly, inching a step or two forwards. Without warning she reached into the pram, stroking the newborn’s tiny hand.
‘It is a her,’ I said, smiling reassuringly at the new mum, who hovered close by, ready to pounce if necessary.
‘Best not to touch the baby,’ I warned gently. I was reluctant to set off a tantrum in the busy shop but the look on Phoebe’s face prompted me to apply the brakes. Her eyes were swivelling with excitement, but there was also a manic element to her look that frightened me. Despite her slightness, there seemed to be a barely contained violence simmering beneath the surface, an unexploded rage. Besides, I wanted to secure an escape route for the young baby’s mother. She looked distinctly uncomfortable and who could blame her?
‘It’s Ella,’ the new mum responded politely, edging herself between Phoebe and the pram.
‘Can I kill it?’
The woman looked at me in horror, her eyes widened in alarm. Jerking the
pram backwards, she swung it into the next aisle and stalked away, turning to bestow one final look of disgust my way.
‘Fucking baby! I’m going to eat it, I am,’ Phoebe called out gruffly after her.
‘Be quiet,’ I growled under my breath, grabbing her elbow again and marching her to the cold aisle so that I could grab some milk. ‘You mustn’t say horrible things like that.’
‘You mustn’t say horrible things like that.’
I stared at her, considering my best move. ‘Right, choose something for lunch and then we’ll go,’ I suggested mildly, though my teeth were gritted.
‘Blwah, ew!’ The retching started.
‘Right, let’s go, right now.’
Several heads turned as I slipped my arm around Phoebe’s waist, propelling her towards the checkouts. Shoppers from all angles eyed the pair of us as if we carried some contagious disease. An elderly gentleman stood at the end of our aisle, two bags of shopping planted either side of his feet. He stared openly as we approached. Phoebe squirmed and fought me off, still gagging grotesquely. It was an awful, stomach-churning noise and I felt myself reddening with all the attention being focussed on us.
‘Goodness, your daughter’s clearly out to lunch, my dear,’ the old gentleman whispered loudly in the way old people seem to do, his eyes twinkling with sympathy. ‘It must be very difficult for you.’
Until fostering I had never realised how rude some people could be. I glanced at Phoebe, wondering the effect such thoughtless words would have on her. Fortunately she seemed to be switching her attention elsewhere. Nodding grimly to the elderly customer, I was about to pay for the milk and guide Phoebe out of the shop when I realised that she had spotted the confectionery shelves.
‘Please may I have some chocolate?’ she asked, her eloquence incongruous with her unrefined appearance.
Were it not for the fact that she looked as if she might be in danger of snapping in half right there in the middle of the shop, I would have marched her home empty-handed. As it was, I felt desperate to get some calories inside her, in whatever form I could.
‘Yes, choose something quickly then,’ I told her.
Outside the shop, Phoebe removed the wrapper from her Twix bar, discarding it casually over her shoulder. She was about to tuck into the chocolate when I caught hold of her wrist.
‘Wait a minute, honey. Go and pick up your litter and put it in the bin first.’
‘You do it.’
‘No,’ I said calmly. ‘It’s your wrapper, not mine. You need to pick it up now, before it blows away.’
‘No, leave it there. The bin men will get it when they come.’ Her tone was dismissive. All at once she shoved a third of the bar in her mouth, her cheeks bulging.
Grabbing the rest of the chocolate from her hand, I held it behind my back. Never one to court attention, I felt conspicuous, uncomfortably aware of the glances we were attracting from passers-by. I forced my shoulders back and tried to compose myself.
‘You are not going to eat the chocolate until you deal with the wrapping. By the time I count to five I want you to pick it up and put it where it belongs – in the bin. If you don’t do as I ask, I will throw the chocolate away. Do you understand?’
Dropping her hands to her hips, she splayed her legs to stand her ground, glaring at me. ‘I’m not picking it up and you can’t make me! Give me my chocolate back.’
‘One, t-w-o …’ I counted as slowly as I could, willing her to turn and do as I’d asked. A small crowd had gathered outside the shop, watching the showdown with amused interest.
‘GIVE ME MY FUCKING CHOCOLATE BACK!’ she screamed, her face puce with anger.
As a foster carer, it can sometimes be a challenge to see beyond difficult behaviour and not take it personally, particularly if your own children suffer as a result. Mercifully, with regular mealtimes, a calm environment and a reliable routine in place, most children quickly respond and start to seek out the trusted adult’s approval.
When looking after a ‘challenging’ child, I sometimes find myself recalling previous placements – two-year-old Billy, for example, with his pudgy knees, brown eyes full of mischief and the foulest language I’ve ever heard. After a few weeks in a house where he wasn’t regularly set upon by his sadistic stepfather, the toddler was a delight to be around and began to use words that began with letters other than ‘f’.
‘Three, f-o-u-r …’ Mortified though I was, I couldn’t give in to Phoebe’s demands any more than I could allow her to drink liquid soap. No child could possibly feel secure if they were allowed to wield power over the adults around them. I felt she needed someone to take control and show her that there were limits, lines that I simply wouldn’t allow her to cross. Until she learnt to impose those limits herself, something most children grasped as toddlers, I would have to do it for her. I had to accept that there might be nothing I could do to alleviate the problems associated with autism, but I was determined to help her gain some self-control so that she would feel safe in her own skin.
‘Five,’ I said quietly, dropping the half-mauled bar into the bin and then bending to pick up the wrapper.
Phoebe balled her fists and threw her head back, wailing a tortured roar of fury.
‘Well done, my dear. Good on you!’ The old man who had watched us inside the shop shuffled over and patted my arm. ‘Old-fashioned discipline, that’s what she needs. Shame you didn’t do it when she was a toddler but at least you’re on the right track now. Let’s hope it’s not too late.’
Shamed, I gave him a crooked smile and turned towards home, praying the outraged Phoebe would follow me without further protest.
She repeated everything I said for the rest of the day – apart from the time she spent screaming for no discernible reason. By midday Emily and Jamie had lost all trace of humour and decided to seek refuge in the garden. Shutting themselves away in the summerhouse, essentially a shed with curtains, they played cards and board games for the entire afternoon. How I longed to follow them and draw up the barricades behind me. I felt guilty that the placement was spoiling the start of their school holiday but at least they were together and it was probably best they gave Phoebe a wide berth for a few days, in case she took it into her head to lash out at one of them again.
My attempts to engage Phoebe in some sort of constructive play failed. She seemed to lack any imagination, preferring to walk around in circles like a caged animal, talking incessantly. Every now and again she would enter a period of calm, when she would sit and chat like any other eight-year-old girl. Once or twice I broached the subject of the mother and baby in the shop, explaining that if she couldn’t say anything nice, it would be best not to say anything at all. She responded with a blank expression, as if the incident had been a figment of my imagination. Sometimes it was as if Phoebe had just emerged from a coma and had no access to old knowledge, even if it was from only a few hours earlier.
At least with her hair now clean and less matted, she looked a bit more ‘normal’, bordering on pretty actually, when she wasn’t flapping her arms in a crazy way. I wondered how she behaved at school and whether she had any friends she could play with. She couldn’t seem to sit still, even for a minute. It was as if she had restless leg syndrome that had spread to her whole body (my mum would have called it ‘Syvitis Dance’). Whatever the cause, her strange actions were exhausting to watch and my appetite was shot to pieces by the time we sat down for our meal that evening.
Phoebe’s eyes bulged when I put her dinner on the table, staring at her plate with such horror that anyone would have thought I’d just unveiled a lamb’s head instead of pizza Margherita.
‘What’s wrong, Phoebe? Don’t you like pizza?’
I had tried to find out what she might like to eat during the day, but each time I mentioned food she had gagged. Breakfast had been a small bowl of porridge, Phoebe’s untouched pancake polished off by Emily, who hated to see good chocolate going to waste. She had refused lunch so I was keen for her
to eat something that evening. I thought I couldn’t go wrong with a trusty Italian meal. Every child I had fostered so far had had food issues, but usually it was a case of trying to stop them from gorging themselves until they were sick.
Phoebe pushed her plate away, retching. ‘I want porridge,’ she choked, her eyes irresistibly glued to the source of her revulsion.
Emily lowered her own pizza slowly to her plate and Jamie screwed up his face, staring at Phoebe in disgust. ‘Can you stop her making that noise, Mum?’ he asked, his chin tucked close to his chest as if close to throwing up himself.
I whipped Phoebe’s plate away, slipping it onto the bookshelf behind me. Her shoulders sagged in relief but she continued to make gagging noises.
‘Alright, that’s enough, Phoebe. Take some deep breaths – it’s gone now. But you must tell me what sort of thing you eat at home, so I can get something you like.’
‘I only eat porridge,’ she said, her breath coming in short gasps. She was almost in tears. Her eyes were still bulging as if food were somehow a threat to her safety.
‘Yes, I know you prefer porridge for breakfast, but what do you like for lunch and dinner?’
‘What do you like for lunch and dinner?’ she mocked, then clamped her hand over her mouth. My concern was suspended by a moment’s jubilation. She realises, I thought, she actually knows what she’s doing. I wasn’t quite sure what the implications were but for some reason I was filled with a sense of optimism.
‘I only eat porridge, nothing else. Oh, except chocolate. Anything else makes me …’ she retched again, exaggeratedly. ‘Blwha, sick.’
Emily and Jamie exchanged disgusted glances.
‘Can we leave the table, Mum?’ they chorused.
‘Yes, OK. You can watch TV while you eat your pizza, if you want,’ I said, breaking one of our chief house rules. Usually I was quite strict about eating our meals at the table. It was just about the only time in the day when we had a proper, uninterrupted conversation but if our chat was to be interspersed with Phoebe’s throat spasms, I supposed it was worth skipping.