by John Donvan
experiencing high fevers: Lauren P. Curran et al., “Behaviors Associated with Fever in Children with Autism Spectrum Disorders,” Pediatrics 120, no. 6 (2007): 1386–92.
Melatonin helped some children: Beth A. Malow et al., “Melatonin for Sleep in Children with Autism: A Controlled Trial Examining Dose, Tolerability, and Outcomes,” Journal of Autism and Developmental Disorders 42, no. 8 (2012): 1729–37.
Risperidone and other antipsychotics: C. J. McDougle et al., “Risperidone for the Core Symptom Domains of Autism: Results from the Study by the Autism Network of the Research Units on Pediatric Psychopharmacology,” American Journal of Psychiatry 162, no. 6 (2005): 1142–48.
At the National Institutes of Health, the DNA: Jill L. Silverman, Mu Yang, Catherine Lord, and Jacqueline N. Crawley, “Behavioural Phenotyping Assays for Mouse Models of Autism,” Nature Reviews Neuroscience 11 (2010): 490–502.
neural wiring of the fruit fly: Ralph Greenspan, “Using Fruit Flies to Map the Network of Autism-Associated Genes,” Simons Foundation Autism Research Initiative, January 2011, https://sfari.org/funding/grants/abstracts/using-fruit-flies-to-map-the-network-of-autism-associated-genes.
“that of eugenic abortion”: Ne’eman, “Future (and the Past) of Autism Advocacy.”
“Autism is part of what I am”: Oliver Sacks, “A Neurologist’s Notebook: An Anthropologist on Mars,” New Yorker, December 27, 1993.
call the NYU Child Study Center: “An Urgent Call to Action: Tell NYU Child Study Center to Abandon Stereotypes Against People with Disabilities,” Autistic Self Advocacy Network, December 8, 2007, http://autisticadvocacy.org/2007/12/tell-nyu-child-study-center-to-abandon-stereotypes/.
other, more recognized, disability organizations: Ne’eman’s recollections on ASAN and his campaign for neurodiversity are from an author interview.
had attracted coverage from: Christina Boyle, “Psych Groups’ Fury over ‘Ransom’ Ads,” New York Daily News, December 13, 2007.
“ride out the storm”: Joanne Kaufman, “Campaign on Childhood Mental Illness Succeeds at Being Provocative,” New York Times, December 14, 2007.
“You don’t have my son”: “Ransom Notes and Love Letters,” MOM–Not Otherwise Specified Blog, December 10, 2007, http://momnos.blogspot.com/2007/12/ransom-notes-and-love-letters.html.
“These ads reflect”: Ari Ne’eman interview.
Autism Speaks awareness-raising “walk”: “Locally-Founded Autism Group Protests D.C. Walk for Autism,” WAMU American University Radio, Washington, DC, November 2, 2009.
video called I Am Autism: Claudia Wallis, “ ‘I Am Autism’: An Advocacy Video Sparks Protest,” Time, November 6, 2009.
few people who wanted to take him on: Jon Shestack was an exception, who publicly challenged Ne’eman’s argument multiple times.
“disappointing and ill-advised”: “ASAN Condemns Presidential Appointment of Anti-Vaccine Activist Peter Bell,” Autistic Self Advocacy Network, January 12, 2012, autisticadvocacy.org/2012/01/asan-condemns-presidential-appointment-of-anti-vaccine-activist-peter-bell/.
an autistic person any less autistic: Liz Bell’s recollections of her meeting with Ari Ne’eman are from an interview with the authors.
“mindblindness”: Simon Baron-Cohen, Mindblindness: An Essay on Autism and Theory of Mind (Boston: MIT Press/Bradford Books, 1995).
A corollary theory: Simon Baron-Cohen, The Essential Difference: Male and Female Brains and the Truth About Autism (New York: Basic Books, 2003), 37–44.
“rather an elusive category”: David C. Gile, “ ‘DSM-5 Is Taking Away Our Identity’: The Reaction of the Online Community to the Proposed Changes in the Diagnosis of Asperger’s Disorder,” Health 18, no. 2 (2014): 179–95.
twelve different American research centers: C. E. Lord et al., “Multi-Site Study of the Clinical Diagnosis of Different Autism Spectrum Disorders,” Archives of General Psychiatry 69, no. 3 (2012): 306–13.
would not qualify for an Asperger’s diagnosis: J. Miller and S. Ozonoff, “Did Asperger’s Cases Have Asperger Disorder? A Research Note,” Journal of Child Psychology and Psychiatry 38, no. 2 (1997): 247–51.
“definitions influenced by the literature”: Susan Dickerson Mayes, Susan L. Calhoun, and Dana L. Crites, “Does DSM-IV Asperger’s Disorder Exist?” Journal of Abnormal Child Psychology 29, no. 3 (2001): 263–71.
“It’s confusing and not terribly useful”: Claudia Wallis, “A Powerful Identity, a Vanishing Diagnosis,” New York Times, November 2, 2009.
Fred Volkmar of Yale resigned: Author interview with Fred Volkmar.
“But I’d keep Asperger’s”: Wallis, “A Powerful Identity, a Vanishing Diagnosis.”
“to help ensure clinical continuity”: Michael John Carley, “Improve DSM-5 Diagnostic Criteria for Autism,” petition on change.org, https://www.change.org/p/american-psychiatric-association-dsm-5-task-force-and-work-group-improve-dsm-5-diagnostic-criteria-for-autism.
“taking away our identity”: Thread on wrongplanet.net, beginning July 17, 2010, “DSM-5 Is Taking Away Our Identity Soapbox Alert,” http://www.wrongplanet.net/forums/viewtopic.php?p=2923037.
“New Definition of Autism”: Benedict Carey, “New Definition of Autism Will Exclude Many, Study Suggests,” New York Times, January 19, 2012.
“showing fidelity to the research”: Steven Kapp and Ari Ne’eman, “ASD in DSM-5: What the Research Shows and Recommendations for Change,” ASAN Policy Brief, June 2012, http://autisticadvocacy.org/wp-content/uploads/2012/06/ASAN_DSM-5_2_final.pdf.
“did a great service in raising awareness”: Francesca Happé, “Why Fold Asperger Syndrome into Autism Spectrum Disorder in the DSM-5?” View—Simons Foundation Autism Research Initiative, March 29, 2011, http://sfari.org/news-and-opinion/viewpoint/2011/why-fold-asperger-syndrome-into-autism-spectrum-disorder-in-the-dsm-5.
CHAPTER 46: A HAPPY MAN
had not heard before: Donald’s first media contact from outside Mississippi was with French documentarian Anne Georget, who featured him in her 2000 French-language film Histoire, histoires d’autisme. The film had no showing in Forest.
“I wish myself luck”: Donald Triplett shared his yearbook and photographs with the authors.
allow no harm: Recollections about Donald Triplett’s later years are from author interviews with Donald and Oliver Triplett, Celeste Slay, and Gene Walker.
was befriended by: Author interview with Reverend Brister Ware.
“interest in the opposite sex”: Leo Kanner, “Follow-up Study of Eleven Autistic Children Originally Reported in 1943,” Journal of Autism and Childhood Schizophrenia 1, no. 2 (1971): 119–45.
“I wish I knew what his inner feelings”: Ibid., 122.
“It was rather expected”: Donald Triplett interview.
EPILOGUE
A 2013 study found: Anne Roux, Kristy Anderson, Paul Shattuck, and Benjamin Cooper, “Postsecondary Employment Experiences Among Young Adults with an Autism Spectrum Disorder,” Journal of the American Academy of Child & Adolescent Psychiatry 52, no 9 (2013): 931-39.
more than half had never: Shattuck et al., “Postsecondary Employment Experiences.”
Eight out of ten: Kristy Anderson, Paul Shattuck, Benjamin Cooper, Anne Roux, and Mary Wagner, “Prevalence and Correlates of Postsecondary Residential Status Among Young Adults with an Autism Spectrum Disorder,” Autism 8, no. 5 (2014).
A Danish father named: More information about Thorkil Sonne and his organization, the Specialists, can be found on his website at http://specialistpeople.com/.
In late 2015, a New York: More information about New York Collaborates for Autism launch of the Neighborhood Network of New York Community Living Program can be found on the organization’s website at http://nyc4a.org/.
In 2013, Connie and Harvey: More information on California’s Self Determination Program ca
n be found on California’s Department of Developmental Services website at http://www.dds.ca.gov/sdp/.
in 2014, the College of William and Mary: More information on John Elder Robison and the work he has begun at William and Mary College can be found on William and Mary’s website at https://www.wm.edu/news/stories/2013/neurodiversity-advocate-robison-to-teach,-consult-at-wm123.php.
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