But let’s not talk about that yet. There are still a few miracles to explore.
So let’s talk about the baby.
Chapter Four
Here’s the thing about motherhood. It exhausts you and thrills you. It kicks you in the butt, and the very next second makes you feel like a superstar. Most of all, it teaches you to be selfless.
Let me rephrase that. It doesn’t really teach you this. It creates a new selflessness within you, which grabs hold of your heart when you first take your child into your arms. In that profound moment of extraordinary love and discovery, your own needs and desires become secondary. Nothing is as important as the well-being of your beautiful child. You would sacrifice anything for her. Even your own life. You would do it in a heartbeat. God wouldn’t need to ask twice.
* * *
Our beautiful baby Megan was born on July 17, 2000. It was a difficult labor that lasted nineteen hours before ending in an emergency C-section, but I wouldn’t change a single second of it. If that’s what was required to bring Megan into the world, I would have done it ten times over.
For the next five days, while recovering from my surgery, I spent countless hours in the hospital holding her in my arms, fascinated by her movements and expressions. Her sweet, chubby face and tiny pink feet enchanted me. I was infatuated beyond comprehension by her soft black hair and puffy eyes, her sweet knees and plump belly, and her miniature little fingertips and nails. She was the most exquisite creature I had ever beheld, and my heart swelled with inexpressible love every time she squeaked or flexed her hands.
How clearly I remember lying on my side next to her in the hospital bed with my cheek resting on a hand, believing that I could lie there forever and never grow bored watching her. There was such truth in the simplicity of those moments.
Michael, too, was captivated by our new daughter. He went to work during the days, but spent the nights with us in our private room, sleeping in the upholstered chair.
When we finally brought Megan home, I came to realize that Michael was not only the perfect husband, but the perfect father as well.
He was nothing like my own father, who had always maintained an emotional distance. No… Michael changed diapers and couldn’t seem to get enough of our baby girl. He carried Megan around the house in his arms. He read books to her and sang songs. A few times a week, he took her for long walks in the park so I could nap or have some time to myself, simply to shower or cook a meal. I felt like the luckiest woman alive.
Later, when Megan was out of diapers and had finally given up drinking from a bottle at the age of two, I began to feel that I was ready to start writing again.
Michael – always so generous and supportive – suggested that he take Megan to Connecticut every Sunday afternoon to visit his sister, Margery.
It worked out well. Margery was thrilled to spend time with them, and those happy day trips out of the city created an even stronger bond between Michael and Megan.
It wasn’t long before I was submitting feature stories to a number of national parenting magazines. Always, in the back of my mind, however, was the dream of returning to the New Yorker, perhaps when Megan was older.
Sometimes I wonder if I would have done anything differently in those blissful days of new motherhood if I had known about the bomb that was about to drop onto our world. I believe I will always wonder that, and there will be no escaping the regrets, rational or otherwise.
Chapter Five
When Megan was three-and-a-half years old, my father came to visit us in New York. It was the first time he had seen our house (we lived in a brownstone in Washington Square), and he mentioned repeatedly that he was sorry for not coming sooner. He said he was a “terrible grandfather.”
“Don’t worry about it, Dad,” I replied as I passed the salad bowl across the table. “I’ve been terrible about visiting you, too. Life just gets so busy sometimes. I understand. It’s hard to get away.”
It was a lie, casually spoken, and we both knew it. Nothing had ever been easy between the two of us. There was an awkward tension that was obvious to everyone, including Michael, who was the one person in my life Dad actually approved of.
“You caught yourself a good man there,” he gruffly said on our wedding day, then he patted Michael on the back and left early.
But of course he would love Michael. Everyone loved Michael. He was a handsome, charming, witty, Harvard-educated lawyer. A good provider and a devoted husband. As far as my father was concerned, Michael’s small-town upbringing on a farm in the Midwest was the icing on the cake. I think Dad was still in shock that I had managed to marry such an amazing man.
We finished dinner and dessert, then Dad went off to bed at nine, not long after Megan fell asleep.
He planned to stay only twenty-four hours.
The following day, I worked hard to keep him busy and avoid any awkward silences or conversations about the past. Mom especially. It was not something we ever talked about.
Megan and I took him to the top of the Empire State Building, then we visited the Museum of Natural History, and of course, Ground Zero.
As he drove away, waving out the open car window, Megan slipped her tiny hand into mine, looked up at me with those big brown eyes and asked, “Will Grampy come back again?”
I hesitated a moment, then wet my lips and smiled. “Of course, sweetie, but he’s very busy. I’m not sure when that will be.”
We went back inside.
Michael was at work. The house seemed so empty and quiet.
“Want to make some cookies?” I cheerfully asked.
Megan gave me a melancholy look that will stay with me forever, because it was the first sign of the terrible nightmare that was about to befall our family.
I didn’t know that then, of course. At the time, I didn’t know anything.
“Okay,” she replied.
I picked her up and carried her into the kitchen.
* * *
The following morning, Megan didn’t wake until 8:30, which surprised me, because she was usually climbing onto our bed at six a.m. sharp. She was more dependable than our digital alarm clock.
When eight o’clock rolled around and she was still sleeping, I assumed she was tired from our sightseeing trip the day before.
I was wrong about that. It was something else entirely – something I never imagined would ever happen to us.
That was our last day of normal.
Chapter Six
Over the next seven days, Megan grew increasingly lethargic and took long naps in the afternoons. Her skin was pale and she slumped in front of the television without ever smiling – not even for Captain Feathersword.
By week’s end, she was irritable and couldn’t bear it when I touched her, so I made an appointment with our doctor, who told me to bring her in right away.
As I was dressing Megan for the appointment, I noticed a large bruise on her left calf and another on her back. I mentioned this to the doctor, who sent us to the hospital for blood work.
Everything happened very quickly after that. The results came back an hour later, and Michael and I were called into the pediatrician’s office for the results.
* * *
“I’m so sorry to have to tell you this,” Dr. Jenkins said, “but Megan is very sick. The tests have indicated that she has acute myeloid leukemia.”
She paused to give Michael and me a moment to absorb what she had told us, but I couldn’t seem to process it. My brain wasn’t working. Then suddenly I feared I might vomit. I wanted to tell the doctor that she was mistaken, but I knew it wasn’t true. Something was very wrong with Megan, and I had known it before the blood work even came back.
“Are you all right, Mrs. Whitman?” the doctor asked.
Michael squeezed my hand.
I turned in my chair and looked out the open door at my sweet darling angel, who was lying quietly on the vinyl seats in the waiting area with a social worker. She was watching television and twirl
ing her long brown hair around a finger.
I glanced briefly at Michael, who was white as a sheet, then faced the doctor again.
“I’d like to admit her through oncology for more tests,” Dr. Jenkins said, “and start treatment right away.”
No. It wasn’t true. It wasn’t happening. Not to Megan.
“Mrs. Whitman, are you all right?” Dr. Jenkins leaned forward over her desk.
“I’m fine,” I said, though I was nothing of the sort. There was a crushing dread squeezing my chest as I imagined what was going to happen to Megan in the coming months. I knew enough about cancer to know that the treatment would not be easy. It was going to get much worse before it got better.
She was just a child. How was she ever going to cope with this? How was I going to cope?
“You say you want to begin treatment right away,” Michael said, speaking up at last. “What if we don’t agree? What if we want to get a second opinion?”
I glanced quickly at him, surprised at the note of accusation I heard in his voice.
“You’re welcome to get a second opinion,” Dr. Jenkins calmly replied, “but I strongly recommend that you allow us to admit Megan today. You shouldn’t wait.”
Michael stood up and began to pace around the office. He looked like he wanted to hit something.
“Is it that bad?” I asked. “Is there no time?”
There was an underlying note of confidence in the doctor’s eyes, which provided me with a small measure of comfort. “Of course there’s time,” she said. “But it’s important that we begin treatment immediately. It’s also important that you try to stay positive. You’re going to have a difficult battle ahead of you, but don’t lose hope. The cure rate for leukemia in children is better than seventy-five percent. As soon as we get her admitted, we’ll prepare the very best treatment plan possible. She’s a strong girl. We’re going to do everything we can to get her into remission.”
My voice shook uncontrollably as I spoke. “Thank you.”
I stood and walked out of the office in a daze, leaving Michael behind to talk to the doctor. I wondered how in the world I was ever going to explain any of this to Megan.
Chapter Seven
There is nothing anyone can say or do which will ease your shock as a parent when you learn that your child has cancer.
Your greatest wish – your deepest, intrinsic need – is to protect your child from harm. A disease like leukemia robs you of that power. There is no way to stop it from happening once it begins, and all you can do is place your trust in the doctors and nurses who are working hard to save your child’s life. You feel helpless, afraid, grief-stricken, and angry. Some days you think it can’t be real. It feels like a bad dream. You wish it was, but you can never seem to wake from it.
* * *
The first few days in the hospital were an endless array of X-rays, blood draws, intravenous lines, and lastly, a painful spinal tap to look for leukemia cells in the cerebrospinal fluid.
Not only did Michael and I have to get our heads around all of those tests and procedures, we had to educate ourselves about bone marrow aspirations, chemotherapy and all the side effects, as well as radiation treatments and stem cell transplants. In addition, we had to notify our friends and family. Everyone was supportive and came to our aid in some way – everyone except for my father, who remained distant as always.
He sent a get well card. That was all.
I pushed thoughts of him from my mind, however, because I had to stay strong for Megan.
I promised myself I would never cry in front of her. Instead, I cried every time I took a shower at the hospital (I never left), or I cried when Michael arrived and sent me downstairs to get something to eat. During those brief excursions outside the oncology ward, I would take a few minutes in a washroom somewhere and sob my heart out before venturing down to the cafeteria to force something into my stomach.
It was important to eat, I was told. The nurses reminded me on a daily basis that I had to stay healthy for Megan because she would be very susceptible to infection during treatment, and a fever could be fatal.
So I ate.
Every day, I ate.
* * *
Michael had a difficult time dealing with Megan’s illness. Perhaps it had something to do with the loss of his brother when he was twelve. Some days he wouldn’t come to the hospital until very late, and a few times I smelled whisky on his breath.
One night we argued about what we should say to Megan. He didn’t want me to tell her that the chemo drugs would make her throw up.
I insisted that we had to always be honest with her. She needed to know that she could trust us to tell her the truth and be with her no matter how bad it got.
We never did agree on that, but I told her the truth anyway.
Michael didn’t speak to me for the next twenty-four hours.
* * *
“I don’t want my hair to fall out,” Megan said to me one afternoon, while we were waiting for the nurse to inject her with a combination of cytarabine, daunomycin, and etoposide. “I want to go home.”
I dug deep for the strength to keep my voice steady. “I know it’s going to be hard, sweetie,” I replied, “but we don’t have a choice about this. If you don’t have the treatment, you won’t get better, and we need you to get better. I promise I’ll be right here with you the entire time, right beside you, loving you. You’re a brave girl and we’re going to get through this. We’ll get through it together. You and me.”
She kissed me on the cheek and said, “Okay, Mommy.”
I held her as close as I could, kissed the top of her head, and prayed that the treatment would not be too painful.
* * *
Megan’s hair did fall out, and she was extremely ill from the chemotherapy, but within four weeks, she achieved complete remission.
I’ll never forget the day when those test results came back.
Rain was coming down in buckets outside, and the sky was the color of ash.
I was standing in front of the window in the hospital playroom, staring out at the water pelting the glass, while Megan played alone at a table with her doll. I told myself that no matter what happened, we would get through it.
We would not stop fighting.
We would conquer this.
Then Dr. Jenkins walked into the room with a clipboard under her arm and smiled at me. I knew from the look in her eye that it was good news, and my relief was so overwhelming, I could not speak or breathe.
A sob escaped me. I dropped to my knees and wept violently into my hands.
This was the first time Megan saw me cry. She set down her doll and came over to rub my back with her tiny, gentle hand.
“Don’t cry, Mommy,” she said. “Everything’s going to be okay. You’ll see.”
I laughed as I looked up at her, and pulled her into my loving arms.
Chapter Eight
After a short period of recuperation, Megan entered a phase of post-remission therapy, which consisted of more chemo drugs to ensure that any residual cancer cells would not multiply and return.
I wish I could say that our lives returned to normal, but after facing the very real possibility of our daughter’s death, I knew the old “normal” would never exist for us again. Our lives were changed forever, and some of those changes were extraordinary.
From that day forward, I saw more beauty in the world than I had ever seen before. I cherished every moment, found joy in the tiniest pleasures, for I understood this amazing gift called life.
I gloried in the time we spent together, knowing how precious and fragile it all was. Sometimes I would look up at the sky and watch the clouds shift and roll across the vibrant expanse of blue, and I wanted to weep from its sheer majesty.
We lived in a beautiful world, and I felt so fortunate to have Megan at my side. I had learned that I was stronger than I ever imagined I was, and so was Megan. She had fought a difficult battle and had become my hero. I respecte
d and admired her – more than I ever respected or admired anyone. I was in awe of her.
In addition, friends and family offered us help and support, and I saw, through the eyes of my heart, how incredibly lucky we all were to be on the receiving end of all that generosity and compassion. It was something wonderful to witness, and I felt truly blessed.
It may seem an odd thing to say, but I sometimes felt that Megan’s cancer, even though it was painful, had brought something good. It had taught us so much about life and love. I had grown – so had she – and I knew that this change in us was very profound and would affect both our futures.
Later I would learn how right I was.
For something both glorious and mystifying still awaited us.
Chapter Nine
Over the next two years, I helped Megan through her post-remission therapy and cherished every precious moment with her, basking in the joy of our existence.
Michael reacted differently.
He was overjoyed, of course, when Megan achieved remission. We celebrated and went to Disney World for the weekend. But slowly, over time, as the weeks pressed on and there was still no end to the doctor appointments and pills and blood work, he began to withdraw.
Every evening when he came home from work, he poured himself a drink. Though he never consumed enough to become noticeably intoxicated, it was enough to change the core of the person he had once been.
He smiled less often (oh, how I missed his smile) and he left all of Megan’s medical care to me. He didn’t attend any of her appointments, nor did he stay informed about her medications at home. I administered all of them myself.
The Sunday trips to his sister’s house in Connecticut fell by the wayside as well, along with my writing.
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