10. Ibid.
11. Connecticut Attorney General’s Office, “Attorney General’s Investigation Reveals Flawed Lyme Disease Guidelines Process,” www.ct.gov/ag/cwp/view.asp?a=2795&q=414284
12. Weintraub, Cure Unknown, 8.
13. Fox, “The Social Life of Health Information,” 2.
14. Fox and Purcell, “Chronic Disease and the Internet 2010,” 2.
15. Ibid., 3.
16. Ibid.
17. Fox, “The Social Life of Health Information,” 6.
18. Ibid.
19. Ibid., 20.
20. Grann, “Stalking Dr. Steere Over Lyme Disease.”
21. Ibid.
22. Tiejte, “The Worst Things People Say About Unvaccinated Kids,” http://blogs.babble.com/being-pregnant/2011/07/15/the-worst-myths-about-unvaccinated-kids/.
23. Frontline, “Interview: Anthony S. Fauci, M.D.,” www.pbs.org/wgbh/pages/frontline/vaccines/interviews/fauci.html.
24. Wallace, “An Epidemic of Fear,” www.wired.com/magazine/2009/10/ff_waronscience/all/1.
25. Frontline, “Interview: Jenny McCarthy,” www.pbs.org/wgbh/pages/frontline/vaccines/interviews/mccarthy.html#ixzz1UHiLAv1X.
26. Ibid.
27. Lin II, “Measles Are on the Rise,” http://articles.latimes.com/2011/may/14/local/la-me-measles-20110514.
28. Offit, Deadly Choices, xv.
29. Ibid., 173.
30. Centers for Disease Control and Prevention, “How Many Kids Have Autism?” www.cdc.gov/ncbddd/features/counting-autism.html.
31. Wang et al., “Common Genetic Variants.”
32. Parker-Pope, “Autism Risk for Siblings Higher than Expected,” http://well.blogs.nytimes.com/2011/08/16/autism-risk-for-siblings-higher-than-expected/.
CHAPTER 8: PARTICIPATORY MEDICINE AND TRANSPARENCY
1. Fox, “Peer-to-Peer Healthcare,” 6.
2. Ibid., 7.
3. E-Patientdave.com, “About ePatient Dave,” http://epatientdave.com/about-dave.
4. KevinMD.com, “About Kevin Pho, MD,” www.KevinMD.com/blog/about-kevin-md.
5. Ferguson and the e-Patient Scholars Working Group, “e-Patients,” ix–x.
6. Haig, “When the Patient Is a Googler,” 1, www.time.com/time/health/article/0,8599,1681838-1,00.html.
7. Trotter, “A Patient by Any Other Name,” www.fredtrotter.com/2010/12/21/a-patient-by-any-other-name/.
8. Barnes et al., “Complementary and Alternative Medicine Use,” 2.
9. Nakazawa, The Autoimmune Epidemic, 224.
10. Barnes et al., “Complementary and Alternative Medicine Use,” 1.
11. Ibid., 6.
12. Ibid., 1.
13. Porter, The Greatest Benefit to Mankind, 689.
14. National Center for Complementary and Alternative Medicine, “About NCCAM,” http://nccam.nih.gov/about/.
15. Alkon, “More Medical Schools Offer ‘Alternative’ Training,” http://yourlife.usa today.com/health/healthyperspective/post/2011/12/More-Medical-Schools-Teaching-About-Alternative-Medicine/585142/1.
16. Novella, “The Rise of Placebo-Based Medicine,” www.sciencebasedmedicine.org/index.php/the-rise-of-placebo-medicine/.
17. Nakazawa, The Autoimmune Epidemic, 224.
18. Barnes et al., “Complementary and Alternative Medicine Use,” 6.
19. Elliott, Better than Well, 147.
20. Barber, “Are We Really So Miserable?” www.salon.com/life/feature/2009/08/26/barber_age_of_anxiety/index.html.
21. Ibid.
22. Angell, The Truth About the Drug Companies, xx.
23. Donohue, Cevasco, and Rosenthal, “A Decade of Direct-To-Consumer Advertising,” 673.
24. Barber, “Are We Really So Miserable?”
25. Donohue, Cevasco, and Rosenthal, “A Decade of Direct-To-Consumer Advertising,” 673.
26. News-Medical.net, “Only 15 US Pharmaceutical Ads Adhere,” www.news-medi cal.net/news/20110819/Only-15-US-pharmaceutical-ads-adhere-to-FDA-Prescription-Drug-Advertising-Guidelines.aspx.
27. Ibid.
28. FDA.gov, “Prescription Drug Advertising: A Glossary of Terms,” www.fda.gov/Drugs/ResourcesForYou/Consumers/PrescriptionDrugAdvertising/ucm072025.htm#F, “F.”
29. Dreifus, “A Doctor Puts the Drug Industry Under the Microscope,” 5.
30. FDAzilla.com, “About FDAzilla,” http://fdazilla.com/about.aspx.
31. Gever, “Medical News: Advocacy Groups Mum on Pharma Ties,” www.medpagetoday.com/PublicHealthPolicy/Ethics/24328.
CHAPTER 9: WHAT FUTURE, AT WHAT COST?
1. American Diabetes Association, “Type 1,” www.diabetes.org/diabetes-basics/type1/?utm_source=WWW&utm_medium=DropDownDB&utm_content=Type1&utm_campaign=CON.
2. Roman, “Why Everyone Is So Angry,” www.philly.com/philly/blogs/public_health/Why-is-everyone-so-angry-at-Paula-Deen-.html.
3. Partnership to Fight Chronic Disease, “The Growing Crisis of Chronic Disease in the United States,” http://fightchronicdisease.org/resources/research.cfm.
4. Porter, The Greatest Benefit to Mankind, 15.
5. Ibid., 29.
6. Ibid.
7. Centers for Disease Control and Prevention, “Heart Disease Facts,” www.cdc.gov/heartdisease/facts.htm.
8. American Diabetes Association, “Diabetes Statistics,” www.diabetes.org/diabetes-basics/diabetes-statistics.
9. The President’s Council on Fitness and Sports, “Physical Activity Facts,” www.fitness.gov/resources_factsheet.htm.
10. Ibid.
11. Ibid.
12. Centers for Disease Control and Prevention, “Children and Diabetes,” www.cdc.gov/diabetes/projects/cda2.htm.
13. The President’s Council on Fitness and Sports, “Physical Activity Facts.”
14. Centers for Disease Control and Prevention, “Childhood Obesity Facts,” www.cdc.gov/healthyyouth/obesity/facts.htm.
15. Painter, “Study: US Obesity Rates Expected to Climb,” http://yourlife.usatoday.com/fitness-food/diet-nutrition/story/2011-08-29/Study-Obesity-rates-projected-to-climb-in-US-and-UK/50180424/1?csp=ylf.
16. Pollack, “Disease of Rich Extends Its Pain,” www.nytimes.com/2009/06/13/health/13gout.html?emc=eta1.
17. Ibid.
18. National Cancer Institute, “Cancer Trends Progress Report,” http://progressreport.cancer.gov/doc.asp?pid=1&did=2007&mid=vcol&chid=71.
19. National Association of Chronic Disease Directors, “Health Reform, Prevention, and Chronic Disease,” 2.
20. Partnership to Fight Chronic Disease, “2009 Almanac of Chronic Disease,” 16.
21. Center for Science in the Public Interest, “Food Additives,” http://cspinet.org/reports/chemcuisine.htm#nitrites.
22. Pollan, “Unhappy Meals,” http://michaelpollan.com/articles-archive/unhappy-meals/.
23. Bittman, “Vegan Before Dinnertime,” http://well.blogs.nytimes.com/2009/02/27/vegan-before-dinnertime/.
24. Centers for Disease Control and Prevention, “Basic Statistics,” www.cdc.gov/hiv/topics/surveillance/basic.htm.
25. Centers for Disease Control and Prevention, “2011 CDC Health Disparities and Inequalities Report,” 3.
26. Ibid., 2.
27. Lichtenfeld, “Cancer Facts and Figures 2011,” www.cancer.org/AboutUs/DrLensBlog/post/2011/06/17/Cancer-Facts-and-Figures-2011-Poverty-is-a-Carcinogen-Does-Anyone-Care.aspx.
28. American Cancer Society, “Cancer Facts and Figures 2011,” 24.
29. Puhl and Heuer, “The Stigma of Obesity,” 1.
30. Ibid., 4.
31. Asthma and Allergy Foundation of America, “Information About Asthma,” http://www.aafa.org/display.cfm?id=9&sub=42.
32. Ibid.
33. ScienceDaily.com, “Air Pollution Alters Immune Function,” www.sciencedaily.com/releases/2010/10/101005171042.htm.
34. Nakazawa, The Autoimmune Epidemic, 45.
35. Ibid., 51.
36. Ibid., 75.
37. Ibid., 248.
38. Harmon, “Where’d You Go with My DNA?” www.
nytimes.com/2010/04/25/weekinreview/25harmon.html.
39. National Institutes of Health, “Stem Cell Basics,” http://stemcells.nih.gov/info/basics/basics1.asp.
40. Jan, “Most GOP Candidates Oppose Stem Cell Funding,” www.boston.com/news/science/articles/2011/08/07/most_gop_candidates_oppose_stem_cell_funding/?rss_id=Boston.com+%2F+Boston+Globe+–+National+News.
41. Henry J. Kaiser Family Foundation, “Summary of New Health Reform Law,” 1.
42. Hoffman, “Health Care Reform and Social Movements,” 76.
43. Ibid.
44. Ibid.
45. Ibid., 77.
46. Ibid., 78.
47. Ibid.
Bibliography
Adler, Robert E. Medical Firsts: From Hippocrates to the Human Genome. Hoboken, NJ: John Wiley & Sons, 2004.
Alkon, Cheryl. “More Medical Schools Offer ‘Alternative’ Training.” http://yourlife.usatoday.com/health/healthyperspective/post/2011/12/More-Medical-Schools-Teaching-About-Alternative-Medicine/585142/1. Accessed January 29, 2012.
American Autoimmune Related Diseases Association. “Autoimmunity: A Major Women’s Health Issue.” www.aarda.org/women_and_autoimmunity.php. Accessed June 11, 2011.
American Cancer Society. “Cancer Facts and Figures 2011.” www.cancer.org/Research/CancerFactsFigures/CancerFactsFigures/cancer-facts-figures-2011. Accessed September 1, 2011.
American Diabetes Association. “Diabetes Statistics.” www.diabetes.org/diabetes-basics/diabetes-statistics. Accessed May 19, 2010.
———. “Type 1.” www.diabetes.org/diabetes-basics/type1/?utm_source=WWW&utm_medium=DropDownDB&utm_content=Type1&utm_campaign=CON. Accessed August 31, 2011.
American Pain Foundation. “The Problem with Pain.” www.painfoundation.org/get-involved/problem-with-pain.html. Accessed December 21, 2011.
Angell, Marcia, M.D. The Truth About the Drug Companies: How They Deceive Us and What to Do About It. New York: Random House, 2005.
Aronowitz, Robert. “Lyme Disease: The Social Construction of a New Disease and Its Social Consequences.” The Milbank Quarterly 69, no. 1 (1991): 79–112.
Asthma and Allergy Foundation of America. “Information About Asthma, Allergies, Food Allergies, and More!” www.aafa.org/display.cfm?id=9&sub=42. Accessed September 1, 2011.
Atwood, Kimball, M.D. “Yes We Can! Abolish the NCCAM!” www.sciencebasedmedicine.org/index.php/yes-we-can-we-can-abolish-the-nccam/. Accessed August 19, 2011.
Barber, Charles. “Are We Really So Miserable?” www.salon.com/life/feature/2009/08/26/barber_age_of_anxiety/index.html. Accessed August 19, 2011.
Becker, Arielle Levin. “Blumenthal Takes Lyme Disease Fight To Senate.” www.ctmirror.org/story/13311/blumenthal-takes-lyme-disease-fight-senate. Accessed August 3, 2011.
Barnartt, Sharon, and Richard Scotch. Disability Protests: Contentious Politics 1970–1999. Washington, D.C.: Gallaudet University Press, 2001.
Barnes, Patricia M., Barbara Bloom, and Richard L. Nahin. CDC National Health Statistics Report #12. “Complementary and Alternative Medicine Use Among Adults and Children: United States, 2007.” December 2008. http://nccam.nih.gov/news/camstats. Accessed August 11, 2011.
Bartholomae, David, and Anthony Pretrosky, eds. Ways of Reading: An Anthology for Writers. Boston: Bedford/St. Martin’s, 2002.
Bergdolt, Klaus. Wellbeing: A Cultural History of Healthy Living. Malden, MA: Polity Press, 2008.
Bittman, Mark. “Vegan Before Dinnertime.” http://well.blogs.nytimes.com/2009/02/27/vegan-before-dinnertime/. Accessed August 30, 2011.
Boehmer, Ulrike. The Personal and the Political: Women’s Activism in Response to the Breast Cancer and AIDS Epidemics. Albany: State University of New York Press, 2000.
Boston Women’s Health Collective and Our Bodies, Ourselves. “A Brief History and Reflection.” www.ourbodiesourselves.org/about/jamwa4.asp. Accessed May 19, 2011.
Boulis, Ann K., and Jerry A. Jacobs. The Changing Face of Medicine: Women Doctors and the Evolution of Health Care in America. Ithaca, NY: Cornell University Press, 2008.
Burton, Richard, M.D. “Big Pharma Says Your Mysterious Pain Is Real.” www.salon.com/news/environment/mind_reader/2009/06/11/fibromyalgia/index.html. Accessed August 19, 2011.
Campling, Frankie, and Michael Sharpe. Chronic Fatigue Syndrome (CFS/ME): The Facts, 2nd ed. Oxford: Oxford University Press, 2008.
Center for Science in the Public Interest. “Food Additives-Food Safety.” http://cspinet.org/reports/chemcuisine.htm#nitrites. Accessed September 1, 2011.
Centers for Disease Control and Prevention. “Basic Statistics, HIV/AIDS.” www.cdc.gov/hiv/topics/surveillance/basic.htm. Accessed July 20, 2009.
———. “CFS Case Definition.” www.cdc.gov/cfs/general/case_definition/index.html. Accessed March 26, 2011.
———. “Childhood Obesity Facts.” www.cdc.gov/healthyyouth/obesity/facts.htm. Accessed August 14, 2012.
———. “Children and Diabetes: More Information.” www.cdc.gov/diabetes/projects/cda2.htm. Accessed August 30, 2011.
———. “Chronic Disease Overview.” www.cdc.gov/chronicdisease/overview/index.htm. Accessed April 8, 2011.
———. “Heart Disease Facts.” www.cdc.gov/heartdisease/facts.htm. Accessed May 19, 2010.
———. “How Many Kids Have Autism?” www.cdc.gov/ncbddd/features/counting-autism.html. Accessed August 6, 2011.
———. “Obesity and Overweight.” www.cdc.gov/nchs/fastats/overwt.htm. Accessed August 30, 2011.
———. “Surveillance for Lyme Disease: 1992–2006.” www.cdc.gov/mmwr/preview/mmwrhtml/ss5710a1.htm. Accessed July 27, 2011.
———. “The Tuskegee Timeline.” www.cdc.gov/tuskegee/timeline.htm. Accessed May 11, 2011.
———. “2011 CDC Health Disparities and Inequalities Report.” www.cdc.gov/mmwr/pdf/other/su6001.pdf. Accessed July 18, 2011.
Centers for Medicare and Medicaid Services. “Tracing the History of CMS Programs: From President Theodore Roosevelt to President Bush.”
Chen, Esther H., et al.. “Gender Disparity in Analgesic Treatment of Emergency Department Patients with Acute Abdominal Pain.” Academic Emergency Medicine (2008) 15:414–18.
“Civil Rights Chronology.” Civilrights.org. The Leadership Conference on Civil and Human Rights, 2011. www.civilrights.org/resources/civilrights101/chronology.html. Accessed May 17, 2011.
Chronic Pain Research Alliance. “Women in Pain: Neglect, Dismissal and Discrimination: Analysis and Policy Recommendations.” June 2011.
Cohen, Jon. “Updated: In a Rare Move, Science Without Authors’ Consent Retracts Paper That Ties Mouse Virus to Chronic Fatigue Syndrome.” http://news.sciencemag.org/scienceinsider/2011/12/in-a-rare-move-science-without-a.html#.TyM7mf8EZP4.mailto. Accessed January 27, 2012.
Conaboy, Chelsea. “Roll-back Sought on Meal Ban for Doctors.” http://articles.boston.com/2011-06-16/news/29666064_1_gift-ban-meal-ban-doctors. Accessed August 20, 2011.
Connecticut Attorney General’s Office. “Attorney General’s Investigation Reveals Flawed Lyme Disease Guidelines Process, IDSA Agrees To Reassess Guidelines, Install Independent Arbiter.” www.ct.gov/ag/cwp/view.asp?a=2795&q=414284. Accessed August 3, 2001.
Cystic Fibrosis Foundation. “About Cystic Fibrosis.” www.cff.org/AboutCF. Accessed May 19, 2010.
Daaleman, Timothy, DO, MPH. “Reorganizing Medicare for Older Adults with Chronic Illness.” Journal of the American Board of Family Medicine 19 (2006): 3. www.medscape.com/viewarticle/532512. Accessed May 12, 2011.
Deardorff, Julie. “Diabetes’ Civil War.” www.chicagotribune.com/health/ct-met-diabetes-rift-20101122,0,2224886,full.story. Accessed August 25, 2011.
“The Denver Principles.” ACT UP/New York. http://actupny.org/documents/Denver.html. Accessed August 24, 2009.
Dolan, Amanda. “Health Communities and the Dreaded Echo Chamber.” http://blog.wegohealth.com/2011/03/21/health-communities-and-the-dreaded-echo-chamber/. Accessed August 4, 2011.
Donohue, Julie M.,
Ph.D., Maria Cevasco, B.A., and Meredith B. Rosenthal, Ph.D. “A Decade of Direct-To-Consumer Advertising of Prescription Drugs.” New England Journal of Medicine 357, no. 7 (2007): 673–81.
Dreifus, Claudia. “A Doctor Puts the Drug Industry Under the Microscope.” New York Times, September 14, 2004.
Edwards, Laurie. Life Disrupted: Getting Real About Chronic Illness in Your Twenties and Thirties. New York: Walker, 2008.
Elliott, Carl. Better than Well: American Medicine Meets the American Dream. New York: Norton, 2004.
E-Patientdave.com. “About ePatient Dave.” http://epatientdave.com/about-dave. Accessed July 10, 2011.
Fasano et al. “Prevalence of Celiac Disease in At-Risk and Not-at-Risk Groups in the United States.” Archives of Internal Medicine 163, no. 3 (2003): 268–92.
FDA.gov. “Prescription Drug Advertising: A Glossary of Terms.” www.fda.gov/Drugs/ResourcesForYou/Consumers/PrescriptionDrugAdvertising/ucm072025.htm#F. Accessed August 21, 2011.
FDAzilla.com. “About FDAzilla.” http://fdazilla.com/about.aspx. Accessed August 20, 2011.
Feder et al. “A Critical Appraisal of Lyme Disease.” New England Journal of Medicine 357, no. 15 (2007): 1422–28.
Ferguson, Tom, M.D., and the e-Patient Scholars Working Group. “e-Patients: How They Can Help Heal Health Care.” e-patients.net. 2007.
Fillingim et al. “Sex, Gender, and Pain: A Review of Recent Clinical and Experimental Findings.” www.sciencedirect.com/science/article/pii/S1526590008009097. Accessed June 26, 2011.
Fowler, Wendell. “Trying to Find Common Ground.” www.ss-times.com/2011/07/22/trying-to-find-common-ground/. Accessed August 24, 2011.
Fox, Susannah. “Peer-to-Peer Healthcare.” Pew Research Center’s Internet & American Life Project. http://pewinternet.org/Reports/2011/P2PHealthcare.aspx. Accessed July 20, 2011.
———. “The Social Life of Health Information.” Pew Research Center’s Internet & American Life Project. http://pewinternet.org/Reports/2011/Social-Life-of-Health-Info.aspx. Accessed July 11, 2011.
Fox, Susannah, and Kristen Purcell. “Chronic Disease and the Internet 2010.” Pew Research Center’s Internet & American Life Project. http://pewinternet.org/Reports/2010/Chronic-Disease.aspx. Accessed July 12, 2011.
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