Patient Zero and the Making of the AIDS Epidemic

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Patient Zero and the Making of the AIDS Epidemic Page 71

by Richard A. McKay


  Edmonton, Alberta (Canada), 176, 319– 21

  death of, 174, 199– 200, 244, 349, 350 f;

  Elliott, Douglas, 69n87, 246– 49, 256n30,

  diary of contacts of, 108, 167, 174, 267–

  260– 77, 364; AIDS activism of, 260– 63;

  68, 281– 83; early life of, 294– 97; Grey-

  Krever Commission strategy of, 248–

  son portrayal (in Zero Patience) of,

  49, 260, 263– 77, 282– 83, 285– 87. See

  248– 49, 253– 56, 285– 87; Kaposi’s sar-

  also Krever Commission

  coma of, 169– 71, 202, 290, 302n43, 304–

  Emke, Ivan, 20n61, 264n50

  11, 341, 343, 348; meeting with Dritz

  “End to the Silence, An” (Campbell),

  of, 167– 68, 232, 329– 31, 337; negative

  253– 54n22

  media coverage of, 197– 206, 232, 318–

  epidemic (defi nition), 7n15

  20, 326– 37; nickname “The Vector”

  Epidemic Intelligence Service (EIS) offi -

  of, 174n126, 316; opportunistic infec-

  cers, 82– 83, 92– 94, 119– 20, 276

  tions of, 342, 344; peer education and

  epidemics of the past. See cultural narra-

  support work of, 346– 48; persistence

  tives of epidemics

  of Patient Zero story of, 243– 45, 284–

  epidemiology practices, 80– 84, 119– 20;

  88; personal experience of Patient Zero

  cluster testing methods in, 79– 81, 84–

  story of, 4, 30– 41, 176, 183, 197, 289– 94,

  87, 90– 92, 120, 123– 38; index cases

  331– 53; personal physicians of, 42– 44,

  in, 84n16, 111– 12, 287; person- to-

  305, 310, 337– 42; photographs of, 183,

  person contact approach in, 83– 84, 138;

  194, 212– 13, 214 f, 219, 221– 24, 290n6,

  population- based approach in, 83; trac-

  298 f, 305– 7; physical appearance of, 66,

  ing techniques for STDs of, 56– 57, 63,

  168, 181, 183, 290, 299– 300, 332, 337,

  79– 84, 85n17, 90– 94; visual representa-

  343, 370; posthumous reminiscences of,

  tion of data in, 124– 38

  424

  Index

  “Epitaph for the Sexual Revolution” (Rus-

  AIDS on, 172– 73, 317– 37, 347n187, 375;

  sell), v, 68n84

  multiple sexual partners in, 69n87, 172–

  Epstein, Steven, 103

  73, 303, 331, 347n187; physical attrac-

  Erasmus of Rotterdam, 62

  tiveness in, 68, 149– 50, 181, 301– 3; pro-

  Evans, Arthur, 321– 22

  miscuity in, 68– 69, 93, 172–73, 212, 333,

  Expo ’67, 295– 96

  371; regional variations in, 22– 27; re-

  search on, 2– 3, 22– 32, 77– 81, 87– 98,

  “Face of AIDS, The” ( Newsweek), 186n2,

  362– 65; travel in, 25– 27, 42, 104n79, 117,

  193n18

  124, 126, 129, 154, 187– 89, 250, 297– 99,

  Fain, Nathan, 275

  304, 321, 338, 370; venereal disease in, v,

  false- positive test results, 38– 39

  87– 98, 99n65, 375. See also bathhouses;

  Falwell, Jerry, 45, 51, 181

  Dugas, Gaétan; Kaposi’s Sarcoma and

  Farcinatore, Matteo, 52

  Opportunistic Infections (KS/OI) Task

  Farmer, Paul, 56

  Force; Los Angeles cluster study; Shilts,

  Fauteux, Norman, 259 f

  Randy

  Felson, Arthur, 314– 15n83

  Gay Men’s Health Crisis, 116, 323

  female HIV/AIDS patients, 101

  gay physicians, 96– 98

  Field, Martha A., 235– 36

  gay related immune defi ciency (GRID),

  Field Manual of the Venereal Disease

  133, 157, 308– 9, 351

  Divi sion (CDC), 92– 94

  Gay Report, The (Jay and Young), 96– 97,

  Fine Print, 319– 21

  119– 20

  Fleck, Andrew C., 112n99

  Geary, Jim, 324– 25

  “Forum Fans Fears” (Gilbertson), 332– 33

  gender identity disorder, 24

  Foto, Rink, 302n44

  genetic diversity of HIV, 122n125

  Foucault, Michel, 24n71, 25

  germ theory of disease, 70, 75

  Fracastoro, Girolamo, 52, 67

  Gift of Death, The (Picard), 247n3

  Francis, Donald, 237n126, 280– 82, 283

  Gilbertson, Fred, 332– 33

  French Disease. See pox (French Disease)

  Ginzburg, Carlo, 294n14

  Friedman- Kien, Alvin, 99– 100, 169,

  Gladwell, Malcolm, 358n7

  318n92, 337; on Dugas, 42– 45, 69, 341;

  Goffman, Erving, 24n71

  patients of, 305, 309– 10, 342

  Goldstein, Richard, 330– 31

  “Friend’s Death, A,” 349, 351– 52

  gonorrhea, 94– 95

  fungal infections, 8, 327, 344

  Goodstein, David, 153

  Gordon, David, 99

  Galen, 52

  government policies. See Canada; U.S.

  Gallo, Robert, 4n9, 7n14, 17

  government policies

  Garchik, Leah, 160

  Gregory- Lewis, Sasha, 143, 151

  gay community. See lesbian and gay

  Greyson, John, 40, 213– 16, 248– 58, 284– 88,

  communities

  363; critical response to work of, 255– 57,

  gay liberation movement, 23– 25, 95– 98,

  292; transnational experience of, 252–

  145, 189, 299– 300; commercial sex es-

  53. See also Zero Patience (Greyson)

  tablishments and, 303; government

  Grmek, Mirko, 19, 358n8

  policies on disease transmission and,

  Guinan, Mary, 98, 105n82

  229– 37; pink triangle of, 211– 12n74; on

  same- sex marriage and family rights,

  H1N1 epidemic, 361

  288; Stonewall riots and, 95, 145; World

  Haiti/Haitian immigrants, 2– 3, 10, 102n72,

  Pride and, 354– 55

  165; early HIV/AIDS among, 14, 21,

  gay male sexual culture: commercial estab-

  103; origin stories of, 55– 56, 135– 37

  lishments of, 68, 152, 300– 301, 303, 320,

  Halifax, Nova Scotia (Canada), 176, 210,

  336, 343, 351, 364, 369, 374; impact of

  219, 278, 297, 304

  Index

  425

  Hall, Barbara, 354– 55

  and, 27– 30; PWA movement in, 169–

  Hall, I. Walker, 73– 74

  70n106, 314– 15n83; social construc-

  Harden, Victoria, 17n49

  tion of knowledge and, 5– 7, 22– 26, 99–

  Hardy, Anne, 74n117

  100n66, 356– 57; stories of deliberate

  Haverkos, Harry, 103– 4, 343– 44n178

  spreading of disease in, 57, 75– 76, 229–

  Hawaii (Michener), 155

  35, 317– 42, 351– 52; transnational ap-

  Health Insurance Portability and Account-

  proach to, 20– 27, 286– 88; treatment ac-

  ability Act (HIPAA), 36n102

  tivism in, 187– 89; written accounts of,

  healthy carriers, 30n88, 42– 45, 69– 76,

  18– 20, 25– 27. See also And the Band

  292– 93

  Played On (Shilts); Shilts’s portrayal of

  Helen of Troy, 66

  Patient Zero

  Helmont, Jan Baptist van, 54

  HIV- 2, 10n25

&
nbsp; Helms, Jesse, 222

  HIV denialism, 17n51, 237n126

  hemophiliac patients, 3, 195– 96, 236n124,

  Holleran, Andrew, 64, 318n92

  248. See also transfusion- acquired

  homophobia, 22– 26; regional variations

  HIV/AIDS

  in, 22– 25; transmission of disease and,

  hepatitis B, 95, 150– 51, 335

  29– 31; in written accounts of HIV/

  hepatitis C, 247– 48, 268n61

  AIDS, 26

  Herbert, Alan, 334

  homosexuality. See same- sex sexual

  Hernández, Édgar, 361

  activity

  herpes virus, 9n20, 99, 100n68

  “Homosexuality as a Source of Venereal

  Herrup, Cynthia, 50n27

  Disease” (Kanee and Hunt), 89– 90

  Herzberg, Tom, 218 f

  Hooper, Edward, 12, 13n34

  heterosexual HIV/AIDS infection, 101–

  How to Have Sex in an Epidemic (Callen

  3, 165

  and Berkowitz), 173

  highly active antiretroviral therapy

  Hubbard, Jim, 15– 16n45

  (HAART), 16, 249, 287– 88

  Hudson, Rock, 186

  high risk group (as term), 2n5

  human T- cell lymphotropic virus type III

  historical epidemics. See cultural narra-

  (HTLV- III), 7n14

  tives of epidemics

  humor, 183, 205– 6, 209– 10, 319, 321– 22,

  History of AIDS (Grmek), 19

  346– 47

  history of HIV/AIDS in North America,

  15– 22, 354– 76; combination therapy

  Iliffe, John, 358n8

  (HAART) in, 16, 249, 287– 88; deaths

  Illich, Ivan, 24n71

  from HIV in, 7, 15; discovery of the vi-

  images of cluster study data, 79, 80 f, 123–

  rus in, 17, 315; diversity of literature

  38; “Cluster— Connection of LA and

  on, 4– 5, 8n16; divine punishment nar-

  NYC Cases,” 123– 38, 125 f; “Clus-

  ratives in, 45– 46, 51; early period of,

  ter— LA Cases,” 125 f; “Cluster—

  15– 17, 307– 17; federal spending and,

  Relationship of Symptom Onset to Sex

  160; geographic focus in, 2– 3, 7, 9– 10,

  Contact,” 125 f; “Extension of the LA

  22, 104– 5, 308, 311; on healthy car-

  Cluster to NYC and Elsewhere,” 128 f;

  riers, 73n113; on living with HIV, 7,

  Klovdahl’s network dynamics analy-

  207, 252, 288; mainstream media cov-

  sis of, 134– 35, 136 f; “Patient #O and

  erage in, 23, 139– 41, 186– 90, 191– 92,

  his Contacts,” 126 f; pertinent informa-

  198; medical practitioner accounts of,

  tion excluded from, 129– 30, 133– 34;

  31, 292– 93, 308; normalized medical

  representational conventions in, 130–

  response in, 17– 18; origin debates in,

  32; Shilts’s mistaken reading of, 133–

  9– 14, 17, 54– 56; patient viewpoint ac-

  37, 239– 40

  counts of, 290– 94; public awareness of,

  Imagining Patient Zero project, 30n87,

  161n77, 187, 198; public health system

  377– 78

  426

  Index

  immunosuppressive drugs, 121

  Katz, Jonathan Ned, 89n30

  incubation period for AIDS- causing agent,

  Keegan, Michael, 113n100

  120– 22, 132, 135– 38, 167, 226 f

  Kepner, Jim, 226– 27, 229

  index cases, 84, 111– 12, 287

  Kingston, Tim, 226 f

  Inside Out collective, 258

  Kinsman, Gary, 266

  International AIDS Conferences, 8n16, 16,

  Klenk, John, 230– 31

  21, 156, 287, 359

  Klovdahl, Alden, 134– 35, 136 f

  International Health Regulation (WHO),

  Knabe, Susan, 250

  279– 80n82

  Koch, Robert, 70– 71, 83

  intravenous (IV) drug users, 2– 3, 14, 101,

  Koplan, Jeffrey, 315

  103, 165

  KQED, 151– 52, 155

  isolation measures, 28– 30, 72, 228

  Kramer, Larry, 64, 91, 192, 194n22, 196–

  97, 375

  Jackson, Ed, 207– 9, 249, 253n20, 265– 66

  Kraus, Bill, 165

  Jacobsen, Frank, 329

  Kraut, Alan M., 69n89

  Jaffe, Harold, 82, 99, 108n92, 278– 79;

  Krever, Horace, 246, 267, 282, 284

  Shilts’s interview of, 157; silence on

  Krever Commission, 20– 21n61, 32, 40,

  Patient Zero’s identity of, 210

  69n87, 246– 52, 258– 88; as arena of his-

  Jan Hus, 58– 59, 60– 61 f

  torical production, 264– 67; costs of,

  Jay, Karla, 96– 97

  249; on Dugas and Patient Zero, 269–

  Jerome of Prague, 58– 59, 60– 61 f

  72 t, 280– 88; Elliott’s strategy at, 248–

  Jessamine, Gordon, 274– 77, 284

  49, 260, 263– 77, 282– 83, 285– 87; Final

  Joint United Nations Programme on HIV/

  Report of, 284– 87; goal of, 246– 47, 252,

  AIDS, 7

  259; hearing schedule of, 268, 273; in-

  Jones, Cleve, 165

  tervener participants in, 247, 251, 259–

  Jones, David, 50

  60; media coverage of, 247n3, 263– 64,

  Journal of the Plague Year, A (Defoe), 62,

  282n89; Picard’s book on, 247n3; public

  319

  hearings of, 247– 48, 251, 258– 59, 282;

  Juranek, Dennis, 100

  theatricality of, 251– 52; transnational

  approach of, 251– 52

  Kaposi’s sarcoma (KS), 2, 9, 304– 7; demo-

  KS/OI Task Force. See Kaposi’s Sarcoma

  graphics of, 101; Dugas’s experiences

  and Opportunistic Infections (KS/OI)

  of, 169– 71, 202, 290, 302n43, 304– 11,

  Task Force

  341, 343, 348; early study of, 308– 17; as

  KTVU, 155

  gay cancer, 57, 208, 244, 305, 323; her-

  Kushner, Rose, 28– 30

  pes virus and, 9n20, 100n68; increases

  in occurrence of, 98– 101; public educa-

  Laboratory Centre for Disease Control

  tion on, 328– 29; treatments for, 314– 15;

  (LCDC), 274– 77, 282– 83, 284

  visibility of patients with, 327– 28

  Langmuir, Alexander, 82

  Kaposi’s Sarcoma and Opportunistic In-

  Lanzaratta, Philip, 309– 10, 316

  fections (KS/OI) Task Force, 81, 82,

  LaRouche, Lyndon, 180, 221

  98– 107, 279; case control study of, 101–

  LaRouche Initiative, 180, 186– 87

  5; case numbering by, 104n79; Case/

  Latour, Bruno, 116n105

  Patient 57 of, 104– 9, 110 f, 126 f, 127 f,

  Laubenstein, Linda, 42– 43, 170– 71, 174,

  298, 310– 12; geographic hypothesis of,

  315– 16; on Dugas as “The Vector,”

  104– 5; infectious disease hypothesis of,

  174n126, 316; patients of, 305, 309, 342

  102– 3; Jay- Young data set and, 96– 97,

  Lawrence v. Texas decision, 23

  101, 118– 19. See also Los Angeles clus-

  leather, 332

  ter study

  Leavitt, Judith Walzer, 43, 293

  Kaposi’s Sarcoma Research and Education

  legal considerations. Se
e patient rights

  Foundation, 318, 328– 29

  Leishman, Katie, 144

  Index

  427

  leprosy, 46

  Los Angeles Herald Examiner article and

  lesbian and gay communities, 10, 15n44; in

  image, 113n100, 114 f

  Canada, 299– 301; decriminalization of

  Lovato, Pietro Antonio, 52

  homosexuality and, 94– 95, 299; early

  Luther, Martin, 59– 62, 64– 65

  signs of HIV/AIDS in, 14, 21; gay lit-

  Luyombya, Henry, 354– 55

  erature of, 64; homophobia and, 22–

  lymphadenopathy- associated virus (LAV),

  25, 29– 31; leather as signal in, 332; nar-

  7n14

  ratives of beauty and vice in, 67– 69;

  Lynch, Michael, 20– 21n61, 23, 189n14,

  regional variations in, 22– 27; as risk

  241, 366

  group for HIV/AIDS, 2– 3, 9n20, 22,

  68– 69, 80; as risk group for STDs, 64,

  Macdonell, Spencer, 330, 365

  86– 98; written accounts of, 25– 26. See

  MacNeil, Robert, 196– 97

  also activism; history of HIV/AIDS in

  Mains, Geoff, 336

  North America

  Maley, Ken, 152– 53

  Levaque, Pedro, 300– 301

  Mallon, Mary (“Typhoid Mary”), 30n88,

  Levin, Martin, 131 f

  45, 69– 75, 292– 93, 335

  Levy, Jay, 7n14

  “Man Who Gave Us AIDS, The” ( New

  “Liberace’s Music Helped Cure Me”

  York Post), 195– 98

  (Greyson), 215n77

  March on Washington, October 1987, 202,

  Linder, Johan, 54

  207, 238, 241

  living with AIDS. See people with AIDS

  Marmor, Michael, 117

  (PWAs)

  Marshall, Stuart, 254

  living with HIV. See people living with

  Martin, Brian, 12n31

  HIV

  Mass, Lawrence, 191, 303n48

  Loeffl er, Friedrich, 70

  Mathias, Richard, 30n87, 273– 74

  long- term nonprogressors, 8n17

  Maupassant, Guy de, 63– 64

  Lorch, Paul, 325, 328

  Maupin, Armistead, 153– 55

  Los Angeles cluster study, 19, 27– 28, 32,

  Maynard, Michael, 176, 333– 35, 337– 40,

  40, 77– 138; actual exposures of cases

  345

  in, 122; background and context of, 77–

  Mayor of Castro Street, The (Shilts), 153,

  105; coding of cases in, 108– 12; commu-

  155– 56, 191, 193n18, 203

  nication and interpretation of, 81; Dar-

  Mbeki, Thabo, 17n51

  row’s reported repudiation of, 137, 238;

  McCaskell, Tim, 249

  Dugas and, 310– 13; effort to identify a

  McGough, Laura, 67

  source in, 107– 16; incubation period es-

  McQueen, Robert, 146– 50

  timates and, 120– 22, 132, 135– 38; infl u-

  media reporting, 17n49, 23, 39, 86, 139– 41,

 

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