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Once Upon a Wish

Page 1

by Rachelle Sparks




  ONCE

  UPON A

  WISH

  ONCE

  UPON A

  WISH

  True Inspirational Stories of Make-A-Wish Children

  by RACHELLE SPARKS

  BENBELLA BOOKS, INC.

  DALLAS, TEXAS

  The stories in this book were told from the perspectives and recollections of the families involved.

  Copyright © 2013 by Rachelle Sparks

  All rights reserved. No part of this book may be used or reproduced in any manner whatsoever without written permission except in the case of brief quotations embodied in critical articles or reviews.

  BenBella Books, Inc.

  10300 N. Central Expressway, Suite 530

  Dallas, TX 75231

  www.benbellabooks.com

  Send feedback to feedback@benbellabooks.com

  Printed in the United States of America

  10 9 8 7 6 5 4 3 2 1

  Library of Congress Cataloging-in-Publication Data is available for this title.

  978-1-937856-16-8

  Editing by Marite Hart

  Copyediting by Cortney Strube

  Proofreading by Christine Koch and Amy Zarkos

  Cover design by Kit Sweeney

  Text design and composition by Neuwirth & Associates, Inc.

  Printed by Berryville Graphics, Inc.

  Distributed by Perseus Distribution

  (www.perseusdistribution.com)

  To place orders through Perseus Distribution:

  Tel: (800) 343-4499

  Fax: (800) 351-5073

  E-mail: orderentry@perseusbooks.com

  Significant discounts for bulk sales are available. Please contact Glenn Yeffeth at glenn@benbellabooks.com or (214) 750-3628.

  “While we try to teach our children all about life, our

  children teach us what life is all about.”

  —Angela Schwindt

  For my boys,

  Bobby, Andrew, and Evan

  Contents

  Copyright

  Foreword by Frank Shankwitz, Cofounder, Make-A-Wish Foundation

  A Note from the Author

  Introduction

  STORY ONE Tatum Null

  STORY TWO Katelyn Atwell

  STORY THREE Brittney Wolfe

  STORY FOUR Garrett Stuart

  STORY FIVE Meera Salamah

  STORY SIX Dakota Hawkins

  STORY SEVEN Tien Leou-on

  STORY EIGHT Serena Butler

  Messages from the Families

  Acknowledgments

  About the Author

  FOREWORD

  IN APRIL 1980, I met a seven-year-old boy named Chris Greicius, who would change my life and, to date, the lives of more than two-hundred fifty thousand children worldwide.

  Chris had leukemia and was not going to win his battle. At the time, I was a motorcycle officer with the Arizona Highway Patrol. When I learned that Chris had a wish to become a highway patrol motorcycle officer, like his heroes Ponch and John from the TV series CHIPS, I became part of a group of officers that would make his wish come true. We turned Chris into the first and only honorary Arizona Highway Patrol officer in the history of the patrol and presented him with a custom highway patrol uniform, complete with hat, badge, and his most prized possession, his uniform motorcycle wings.

  While Chris’s wish came true, this little boy forgot about his illness, hospitals, and chemotherapy treatments. He once again became a typical seven-year-old boy, running, laughing, and hopping up and down with excitement. I remember the tears in his mother’s eyes as her son was having fun again, laughing and living, for the moment, like a child.

  Chris passed away a few days after we granted his wish. After his passing, I couldn’t stop thinking of how happy Chris and his mother were during and after his wish. I knew that this happiness needed to be spread to other children with life-threatening illnesses, so I became involved with helping to start a nonprofit foundation that would make their wishes become true. In November 1980, the Make-A-Wish Foundation became official. The first official wish was granted in March 1981.

  The stories included in this book will give you a firsthand look into the lives of eight “Wish” children and their families as they journey through a frightening world of doctors, hospitals, operations, and anxieties. You will feel the power of a simple question—“If you could have one wish, what would it be?”—and find inspiration in the answers.

  You will learn how wishes granted by the foundation give both the children and their families a new focus as they reconnect and have fun together once again, forgetting about illnesses, doctors, and hospitals. Many children go into remission following the granting of their wish, a phenomenon that doctors cannot even explain; a phenomenon many believe can only come from the power of a wish. Not all children survive their illness, but many have lived for several months and years following their wish. All of this because of the Make-A-Wish Foundation and a seven-year-old boy named Chris, who inspired it all.

  FRANK SHANKWITZ, COFOUNDER

  MAKE-A-WISH FOUNDATION

  A NOTE FROM THE AUTHOR

  Dear Reader,

  It is my greatest wish and deepest hope that you will be forever touched by the journeys you are about to embark on as you read the stories of the families featured in this book; these families are some of the strongest, most inspirational in the world. They truly make us realize just how precious life is, and through their optimism, they remind us of the importance of family and friends. These stories inspire us to find light in the darkness and spread it any way we can. I wholeheartedly believe that connectivity between people—the relationships we have, the bonds we share—bind us all together, and I would love to share this with you. I personally invite you to visit and connect with me on my website, www.onceuponawishbook.com.

  SINCERELY,

  RACHELLE SPARKS

  INTRODUCTION

  NEARLY TEN YEARS ago, I sat with a man in a cowboy hat at a coffee shop table. With a leg crossed over his knee, he sat back, settled in, and drifted back in time thirty years, taking me with him. Pen in hand, I was ready—ready to scribble blue ink across the pages of my notebook, ask the right questions, and put the pieces of his story together in my mind as he told it. After all, listening to someone else’s story, capturing it in just the right words, printing it in a newspaper’s black-and-white columns, was my job as a reporter at The Daily Courier in Prescott, Arizona. But when this man, Frank Shankwitz, cofounder of the Make-A-Wish Foundation, took me back to 1980, to when it all began, his words became more than a story; they became windows to the soul of humanity.

  As a reporter in that small, northern Arizona town, I had seen glimpses of the human spirit through stories I had written about local Wish children. I had sat in the living rooms of countless families, tears in my eyes, as they took me on their journeys to places even the most creative of minds could not imagine—dark places of emotional torment, where death was waiting while the rest of the world was living. Places that I, whose life had never been touched by something so unthinkable, could not fathom. In the midst of their stories, my pen would inevitably stop in disbelief. The strength of these families, the maturity of these children, was something that, no matter how many times I heard it, touched and inspired me so deeply. Every story I heard, every glimpse into these families’ lives that I was so graciously given, was a reminder of how deserving they were of the wishes they received—truly life-changing gifts.

  I tried with all my might to capture in words what I took away in my heart—an indescribable sense of hope—but the space I was allotted in the confines of a newspaper was never enough. The stories I wrote became summaries of these families’ lives, small glimpses into their stru
ggles, their determinations, their unwavering strengths, and unthinkable optimisms. I was forced to break down their stories and water down the details, capturing only a fragment of the faith, courage, and hope that pulled them through. I wanted my readers to feel the true impact that wishes had in these families’ lives and learn the whole stories leading to those wishes.

  These families changed me. And when Frank’s watery eyes looked at me from beneath the brim of his hat, unashamed to let his tears fall, I knew the little boy he spoke of from thirty years before had changed him, too. The boy’s name was Chris Greicius, a spirited, seven-year-old fighting leukemia; the day he became a highway patrol officer was a bright point in his dark battle. In 1980, Frank and a few other officers made Chris’s dream come true, changing his life, short as it was, by granting his wish of becoming an officer. When Frank told me about the seamstress who stayed up all night to make a small uniform for Chris, the wings a jeweler cast in one evening, the autographed photo from the actors who played Ponch and John—Chris’s heroes—on CHIPS, I was filled with the same hope I was filled with every time I sat down with a family that had received a wish just like Chris’s.

  But that was just the beginning of the story. When Chris passed away, Frank and fellow officer Scott Stahl traveled to Illinois to conduct a police funeral for their fallen officer, and they had to come up with $1,600 for travel costs in two days. A hat was passed, police agencies across the state were contacted, and they had half of the money in one day. A friend of Frank’s who heard of their mission donated the rest. Trying to keep up, I scribbled fast as Frank continued with stories of how officers in Illinois, who had heard about Chris’s funeral, escorted Frank and Scott to the funeral; how fifteen local police officers who had never even met Chris were there to attend the service; how two strangers lent them their motorcycles to lead the procession; and finally, how Frank and Scott flew home first class when a flight attendant recognized them from local news coverage.

  The generosity continued nine months later when Frank, Scott, Chris’s mother, Linda Bergendahl-Pauling, and two others—the department’s Public Information Officer Allan Schmidt and Kathy McMorris, wife of motor officer Jim McMorris—decided to start the Make-A-Wish Foundation. News coverage around the state of Arizona about Make-A-Wish resulted in the organization receiving envelopes stuffed with checks and piles of money. The first official wish was granted in March 1981 to a child named Frank “Bopsy” Salazar. “He knows he has leukemia, and he has no fear of death,” Bopsy’s mother told Frank. “He knows what’s coming, so he lives life to its fullest.”

  My pen stopped, goosebumps crawling down my arms, as the tears behind Frank’s voice paused the story. That’s when the window opened, exposing that raw, honest, undeniable, aforementioned element of humanity. In that moment, I realized Frank’s story was about much more than a little boy becoming an officer. It was a story revealing the thread that ties us all together—the strength, power, and resilience of the human spirit. It was a story of compassion and generosity, about people coming together to help other people.

  It was also in that moment that the idea for Once Upon A Wish was born. People needed to hear these families’ stories—the heart and guts and truth of them—not just the stories in nutshells. They needed to know that the Make-A-Wish Foundation no longer changes only the lives of terminally ill children, but the lives of those fighting life-threatening medical conditions. These stories are not about death and sadness; they are enlightening stories of love, compassion, determination, and inspiration.

  Frank’s story—the story of the world coming together for the sake of children—and the stories of those featured in this book, unexpectedly became a journey of self-discovery for me, leading me to a world where nothing should be taken for granted and every moment should be lived like it’s the last. The stories in this book will mean something different to every reader, will motivate and offer insight in different ways, but my mission in writing them was to ignite the spark of hope and inspiration that will forever live inside of us.

  • STORY ONE •

  Tatum Null

  “My wish was like a true miracle to me.”

  —Tatum Null

  1

  STANDING IN A corner of the enchanted Castle of Miracles at Give Kids The World Village in Central Florida, tiny hands cupped around the pointy edges of a shiny star, seven-year-old Tatum Null covered her lips with her hands as though telling a secret to her best friend.

  “I wish for all the other children’s wishes to come true,” she whispered to the star before glancing up at the gleaming, dome-shaped ceiling sprinkled with stars. Her parents, David and Sherry, and younger sister, Hannah, watched as she then dropped her star, initialed with “T.C.N.” for Tatum Chloe Null, into a gold-painted box lined with red velvet. Lights twinkled as Tatum’s star vanished magically into the depths of the box.

  “What did you wish for?” Sherry asked playfully, hunching childlike toward Tatum.

  “Mom, I can’t tell you that,” she said with a grin. “Then it won’t come true!”

  A Give Kids The World Village volunteer explained that the star fairy would retrieve all of the children’s stars and place them into the castle sky that night, adding to the thousands of stars already pinned to the ceiling from previous children who had stayed at the village.

  David looked down at his two daughters. “Okay, girls, what’s next?” he asked.

  Hannah looked up at her sister with big, blue, four-year-old eyes lined with face paint and glitter. The pink and blue swirls on Tatum’s face creased as a smile spread across her face.

  “The carousel!” she yelled, and Hannah squealed, jumping up and down.

  “We’ll catch up with you,” David said, and the girls were off, sprinting down the cobblestone road toward the red and white polka-dotted mushroom covering a handcrafted carousel imported from the Netherlands.

  “I’ll race you, Dad!” Tatum hollered to David as they hopped onto the wooden platform of the carousel.

  “But we’ll be going the same speed, Tate,” he said logically.

  “You have to use your imagination!” Tatum yelled before hopping onto the back of a rainbow-colored rooster.

  Sherry placed Hannah on a nearby horse and hung on.

  “Oh, well in that case, you’re on!” David yelled, straddling the back of a rooster next to Tatum’s. The music fired up, and they began their dizzying circles. David scrunched his face to match that of a competitive derby rider, and Tatum did the same.

  “I’m beating you, Dad!” she yelled.

  “You sure are!”

  It was the perfect way to end their first day at Give Kids The World Village, a nonprofit resort in Kissimmee, Florida, that partners with 250 Wish-granting organizations and children’s hospitals to house children with life-threatening illnesses and their families. The Nulls had six more days ahead of them, with meals at the Gingerbread House Restaurant, shows at Julie’s Safari Theater, bedtime tuck-ins by a six-foot-tall rabbit named Mayor Clayton, laughs from talking wishing wells, and banana splits for breakfast.

  Sherry filled the girls’ tub with bubbles that night, and as Tatum carefully smeared a beard and mustache of white suds across Hannah’s face, Sherry asked, “What park would you girls like to visit tomorrow?”

  With free passes to Disney World, Universal Studios, MGM Studios, Disney’s Animal Kingdom, and SeaWorld, Sherry thought it would take longer than a split second to decide.

  “Disney World!” Tatum shouted as she perfected the pointy tip of a foamy cone on Hannah’s head that was slowly taking the shape of a wizard’s hat.

  The decision was made, and the next day, the girls, with their parents trying to keep up with them, spent most of the day dashing from one ride to the next, skipping to the front of each line after Tatum flashed her Make-A-Wish button.

  “Welcome, Princess” was the common greeting at the front of every line, and this expedited service allowed the girls to enjoy each ride in
the park multiple times. Halfway through the day, Tatum’s skips and sprints gradually turned into slow walks.

  “You okay, sweetie?” Sherry asked.

  “Yeah, I’m okay. I’m just a little tired,” Tatum said.

  “Let’s take it easy for a while,” David said, and they relaxed watching light shows and parades before Tatum’s energy increased and she could happily frolic once again toward the next ride. That night, for her eighth birthday, they went to Akershus Castle in The Norwegian Pavilion at Epcot Theme Park.

  “Welcome to our castle,” Ariel from The Little Mermaid said sweetly as Tatum and Hannah looked up at her with wide, star-struck eyes. Ariel bent down and left the girls with bright-red, heart-shaped kisses on their cheeks that they later refused to wash off before going to bed.

  Each morning for the rest of the trip, Tatum and Hannah woke to taps on the door and musical voices of volunteers chiming “gift givers” before presenting them with piles of gift shop toys like key chains and stuffed animals. On Thursday night, two days before they left Give Kids The World Village to return home to Dallas, Texas, it was Christmas in the Castle of Miracles. Children at the village piled onto the laps of Santa and Mrs. Claus and shared their secrets and wish lists. Excited to meet with Santa in January, less than a month after they had met him for Christmas, Tatum and Hannah pranced in circles as they followed their parents back to their villa.

  As their energy dwindled, David scooped Hannah into his arms and she plopped her tired head onto his shoulder. Tatum grabbed Sherry’s hand and, as they walked together, said, “Mom, I found a lump under my armpit.”

  Those words nearly stopped Sherry in her tracks.

 

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