by Uday Prakash
AIIMS – All India Institute of Medical Science – was a considerable distance from Jahangirpuri. And because it was government-run, treatment depended on who you knew and what connections you had. It was the ministers, high-ranking government officers, or the rich and powerful who had access to treatment at AIIMS. Chandrakant and Shobha stood hours waiting in the OPD with Suri in their lap. Either the number they had taken was never called, or perhaps it had been – but, amid the crowd, the doctor had seen Suryakant, looked at him indifferently, and told them to come back another day. After a huge runaround that lasted months, the doctor finally referred them for an MRI – only to discover that the ‘machine wasn’t working’ at the hospital, and they would have to get it done privately. By then Chandrakant had understood: the doctors and staff were in cahoots and received a kickback for every patient sent to a private clinic. But it didn’t matter. In the end, Shobha gathered all the jewellery from her mother, plus what she had taken from the contractor and inspector at Ramakant’s, sold it all, and had the tests done.
By then, Suri was more than a year old, and his head had grown to a substantial size. It was true that his neck was stronger than before, and he could now use it to lift up his head. Either it would wobble for a bit before plopping back down, or he would slide on his knees and try to crawl. But pretty soon he tired and began fighting for breath. Whatever energy he had left over was spent trying to catch his breath, and he soon grew listless and collapsed in a heap wherever he happened to be.
But Chandrakant and Shobha had also recently begun to sense that it wasn’t just his head that was growing, but that his mind, too, was developing more quickly than babies the same age.
Every day he seemed less and less like a baby.
Then I wasn’t able to see Chandrakant for a few months. He did call once, and was at his wit’s end. The doctors had more or less made their pronouncement. According to them, Suri would live at most one-and-a-half or two years. His disease was incurable. Of course, if they had two, two-and-a-half million rupees, something might be done. But to say that this was a sum beyond Shobha and Chandrakant’s wildest dreams would be a gross understatement.
According to him, the doctors said that Suryakant was an abnormal baby and that the cells in his head were reproducing more quickly than the rest of his body, and that this was due to some unknown reason: a neurological disorder was possible, viral or bio-genetic factors could not be ruled out, a poisonous effect of strong environmental pollution could have played a part. Whatever the cause, if this disproportionate development wasn’t stopped, in two-and-a-half-years max, Suri would surely meet his end.
But more than one year has already passed! Only six months left...?
I felt deep sympathy for Shobha and Chandrakant. They’d had a child together on the cusp of old age. But the child had a head like a time bomb sitting atop its own body. Tick, tick, tick, stuck in a countdown that would end its life with an explosion, always busy with plotting not its own life, but its death.
I couldn’t bear looking at Suryakant. He began to recognise me, and when I arrived he smiled and tried to crawl over. I wondered how they did it, spending every second of the day with him. How they managed putting him to bed and waking him up, knowing that each new day brought his life one day closer to the end. What went through Shobha’s mind when she breastfed him? Was the milk nourishing his life or was it fueling the flames of his impending death?
Shobha often wondered if the problem might lie with her, and she cast doubts on herself. Thirty years ago, she was gang-raped by the contractor, inspector, and Ramakant, her betrothed, as the men drank and drank, ate and ate, and watched porn. Her rectum had been shredded by the bottle inserted while on their savage spree. Maybe this had caused permanent strictures in her uterus? Could this be the cause of the seven deaths of her seven children? She couldn’t talk openly with Chandrakant about these suspicions. It was only after her third child had died that she asked a nurse whether something in her womb might be spoiled?
The nurse looked Panjabi. She was plump, middle-aged, and clearly had an eye for making money. She gave Shobha a sharp look.
‘I’m guessing you had an abortion before you got married? How many? You had your fun in bed. But now the bed’s been made. You’ll have to lie in it! Get an ultrasound done of your empty womb. Come see me tomorrow, I’ll get it done for you. It’ll cost seven fifty. Don’t tell your husband. Otherwise forget it.’
But in those days Shobha had no way to scrape together seven hundred and fifty rupees.
A LIVING PUPPET OF STONE, STEEL, CLOTH, AND MUD
She breastfed little Suri. She tickled his chin and his underarms – coochie coochie coo! She clapped her hands merrily and snapped her fingers, and made little bird whistles or cat sounds. But Suri remained unmoved and showed almost no signs of life. She felt that death’s shadow was gaining ground on the two of them, creeping up step by step. She saw in her mind’s eye little Suri wheezing in her lap uncontrollably, then seizing up, going cold, his oversized head plopping down on her lap, lifeless.
She had a dream one night that while trying to lift Suri’s head, it suddenly slipped from her hands, fell on the floor, and burst open. But instead of blood emptying from the head was every colour imaginable, flooding the floor and soaking the carpet – the one that was no ordinary rug, but the one they had called a magic carpet for thirty years, where she and Chandrakant had played their hot, primal games.
The still puzzling thing was that unlike other babies, Suri didn’t cry at all. When he was hungry or needed something, he crawled over to Shobha. Whenever he fell down or got hurt, instead of bursting into tears he closed his eyes and pursed his lips as the pain disappeared inside. Then he touched the place on his body where he had been hurt, and then the thing he had bumped into. And once he got hurt and absorbed the shock, he wouldn’t make the same mistake again. He learned from his experiences very quickly – so quickly that Shobha and Chandrakant couldn’t believe it. It wasn’t just the size of his head that kept getting bigger, but his brain was growing at a rate much faster than babies his age. It looked as if he was constantly thinking, absorbed in his silence, alone inside a secret darkness.
Suri not only didn’t cry anymore, but he also stopped laughing. His expressionless face was like a marionette made of wood, cloth, stone, rusty iron. A weak, misshapen animated little puppet. It had to be a something out of the ordinary to make him laugh. Like one day when Shobha was looking for the knife to cut the veggies. Just a little while before she had taken the knife and placed it in the thali with the potatoes. But now the knife was no longer there; she searched high and low. Suri was in the corner, sitting up against the wall, silently observing her. Shobha, giving up finding the knife anywhere nearby, stood still. When she saw the knife along with a half-peeled potato hidden right where Suri was sitting, he was instantly filled with glee. At first she wasn’t sure what to think, but then joined him in laughter.
One morning he crawled out onto the balcony and stared for a long time out at the houses around and the street below, all the while steadying his heavy head on his shoulders. It was exactly the time when all the kids were on their way to school, and the old folks were out buying bread and milk. Eighteen-month-old Suri seemed to be watching the hustle and bustle with great focus. A schoolboy of eight or nine came running carrying his knapsack, waiting on the side of the road for his school bus. He suddenly remembered something and ran off back where he had come from; the hustle and bustle of the street continued in the five or so minutes the boy was gone. Then the boy appeared again carrying a kids’ water thermos. Suri thought this was hysterical. The boy looked up to see Suri laughing, and realised he was laughing at him because he knew he had forgotten his water bottle at home. The boy looked over to Shobha and shouted, ‘Hey auntie! Your little boy is sooo cute. What’s his name?’
‘Suri!’ she replied, smiling.
‘Suri,’ he repeated, waving and smiling as he walked toward the boy. But he
stopped short when he saw the huge misshapen head. Shobha looked and saw Suri barely managing to wave with one hand, his face twitching, losing strength as he struggled. His lips formed the faint outline of a smile, but it was the strange expression of someone losing control.
Shobha was sure that Suri listened attentively whenever she and Chandrakant talked to each other. He stared at them, never blinking, as if he could understand each and every word.
That day, doctor Parvathi Nambiar of the Neurology Department at Jaipur Golden Hospital called Chandrakant and Shobha in private and told them with visible distress that Suri’s continued survival had been a miracle of miracles, but that he could go at any moment, there was no telling. As far as she was concerned, his time was already up. Somehow, to them, this was the final word from a medical perspective about Suri.
The two were devastated. They avoided looking at one another, knowing that they wouldn’t be able to endure the pain on the other’s face. A kind of inner weeping inside them both kept them on edge. That night, the two of them sat at home in the half flat and spoke in such hushed whispers that it would have been nearly impossible for someone to listen in. Suddenly something in the corner of the room caught Shobha’s eye. They had already turned off the light, and the room was dark except for a faint light from outside that cast diffuse light in the corner. She saw little Suri, sitting quietly leaning against the wall, watching them with stony, worried eyes that twinkled and flamed like little red marbles in the dark.
Shobha and Chandrakant believed that little Suri had both heard and understood everything they said.
His eyes peered at them from that dim corner of the room as if he had just been run over by a truck on the road, watching the living passersby as he lay dying: a last, lonely look. At that moment their son Suri’s eyes had the cold, blank, hard stare of a corpse that had emerged from a sunken ship at the bottom of the ocean, and was suddenly standing on the beach, in the sun, gazing at the living.
Once I asked a doctor I knew if he had heard of this mysterious ‘mangosil’ disease. He said he’d never heard of it. Yes, there was a disease called ‘meningocele,’ but that had more to do with the spinal cord and lower back. It can cause hydrocephalus where the head can’t drain the spinal fluid, and some swelling can occur. But there’s a cure, and it’s not fatal. The doctor continued, ‘I can’t find a disease with the symptoms you’re describing in any of the medical literature. If a disease like that had been detected, it definitely would have been described in the literature – like when AIDS was first found in humans.’
A DEATH DEFERRED, LIFE IN THE HALF FLAT
Three years passed and more. Suri continued to live, putting paid to the predictions and prognostications of the doctors. Not only that, he grew more intelligent, focused, remarkable, and healthier than before. He even began to speak, with a lisp, and picked things up very quickly. He asked his mother about the letters he saw printed in books or on newspapers, and then tried copying them down with whatever paper was at hand. He tried to sketch whatever caught his eye: a bike, Shobha, a cat, dog, radio, fan, bus, cars, motorcycle, TV, tree, house – anything and everything.
Another development occurred during this time in the form of a twenty-one inch black and white Beltek TV that sat on a wooden board fastened with nails to the front wall. It had a remote, which, for the most part, remained in the hands of none other than the misshapen three-and-a-half year old with the big head and little body. Chandrakant’s boss, Gulshan Arora, had given him the TV set for free after he had bought himself a colour Onida in the meantime. Chandrakant got a cable hookup for the cheap price of sixty rupees, and then the TV had loads of channels.
Suri, three years and a few months old, sat for hours watching the TV, leaning against the wall, his massive, heavy head supported by his feeble shoulders, remote in hand. Shobha also liked watching some of the soap operas and channels that played Hindi film music. She finished her work and plopped down and was taken off guard in the beginning when Suri turned on the TV with the remote to exactly the channel she wanted to watch. The grey matter inside his malformed, diseased, ill-proportioned head was developed far beyond that of a typical three-year-old. He was able to read his mother’s mind: all her wishes, all her thoughts. Like a spy he would look into the minds of those before him, and immediately know all their thoughts. Is this really the symptom of a disease, and one that the doctors say is incurable and puts Suri’s life in danger?
Or is it something else entirely?
Chandrakant called me again one day. He told me that the night before he and Shobha had awoken with a start and found Suri wasn’t in bed with them. He was in the corner against the wall watching TV at a very low volume – so low that it hadn’t disturbed their sleep. It must have been after one in the morning. Chandrakant said what was unusual was that he wasn’t watching cartoons or music videos, but had the news on. And that night, the reports of the nuclear tests at Pokhran were just coming in. He sat transfixed, his heavy, odd head sitting atop his little, weak body, as motionless as a statue of iron or stone. His twinkling red eyes were glued to the TV.
Chandrakant said that he felt fearful, and all sorts of notions about Suri popped up in his head. He was much older than his biological age. He was an oddity, this impossibly strange child. He knew things and kept thinking about things that we couldn’t even guess. He couldn’t be distracted like other kids with birds, toys, candy, kitty cats.
A few more months passed without my seeing Chandrakant or getting a call from him. I was getting tangled up with my own problems and stresses during that time. But then, out of the blue, he called at around three in the afternoon. His voice trembled with excitement.
Shobha had given birth to another baby boy. Normal, nothing out of the ordinary, healthy. Even though she was fifty Shobha didn’t have any trouble in labor. The delivery was without incident. Chandrakant couldn’t believe it when he was sitting outside in the waiting room and the nurse told him the news and asked for baksheesh. Maybe Auliya or Balaji had heard their prayers.
He then choked up a little bit. ‘We decided a name right away. Amar – Amarkant. The invincible. Shobha is out of her mind with joy. Suri hasn’t left his side for a second. You absolutely have to come and see the baby. Shobha’s dying to see you. The day after Amar was born Gulshan Arora gave me fifty thousand to set aside for buying our own place, and I’ve talked to a bank about getting two hundred thousand as a loan. Maybe by next month we’ll be able to move to the Janta Flats in Ashok Vihar.
I was stunned by this miracle of nature. By now Shobha was pushing fifty. Kids? At her age? Chandrakant kept talking over the phone. ‘We won’t be able to relax until you’ve come. Shobha insists and insists. Remember the first time we met and I was singing those abhang songs? Vithal had sent you, and everything changed once you came into our lives. Suryakant was also born after we met. I must have done terrible things in my last life that he’s paying the price to free me from. Shobha says that if you don’t come, Amarkant won’t turn out right, either. So get here as soon as you can!’
Those were my toughest days, as tough as writers’ lives often are. Days filled with panic, a feeling that everything was slipping away; nothing was stable, only stress after stress. I had no work at all, nothing saved for the future, no pension. Delhi was changing at an unbelievable pace. Every day new products would appear everywhere that no one could have ever dreamed of. The twentieth century had passed, and the new one was before us. And the dawns of the new one were unlike the dawns before. Only recently one of the greatest Hindi writers died in the Sharda mental hospital, mad and broke. A poet disappeared from home without a trace, and another had taken his own life. There was no place left for writers like me who wrote in this Hindi language. It was now an age of riches, power, violence, criminality, and looting, and it wasn’t any less frightening than the worst nightmare you could imagine. Labour had no more value, and capital was no longer tied to labour – it was now totally free, untethered. My life w
as reduced to the struggle of how to get by. People like Chandrakant and me were more-or-less given a swift kick in the pants by society, who had no use for them under current circumstances.
No matter how bad things were, they could be worse. The shacks and makeshift houses of hundreds of thousands of people living in Delhi were very quietly, very secretively being set ablaze, their whole life reduced to ash. Or bulldozers were sent to destroy the houses, running them over until nothing was left but rubble. The people who lived there, poor and without work, were chased away. All ‘revolutionary organisations’ or cultural institutions were packed with developers, real estate agents, gentrifiers, high-ranking police officers, professors, intellectuals, commission men, all of whom banded together as one to starve to death anyone who dared describe what was going on.
I had been without a real job for fifteen years. I had degrees, important awards, job experience, good qualifications, but no matter what I applied for, I got turned down. The person they hired would be less educated, less experienced, but with good connections, ones in high places. A corrupt force had been spawned, and people like me could get nowhere near it.
I was down, very down, and sinking into despair.
I think another week must have gone until I was able to see them in Jahangirpuri. The road to get to house number E-3/1, bylane number seven, had changed. New buildings were under construction. Everything around was being torn down. Chandrakant told me that lots of people from the area were being evicted and sent to Bhilswa. They heard that a water theme park was going to be built in Jahangirpuri where all the rich kids in Delhi could enjoy their vacations swimming, splashing, snacking, horsing around, having a good time. He told me that he had put down one hundred thousand and taken out a loan for another two hundred for a third-floor public housing flat under construction in phase four of Ashok Vihar. It was a block of four-story apartment buildings for low-income residents. Chandrakant held the utmost gratitude towards his boss, Gulshan Arora, without whom this wouldn’t have been possible. I thought to myself that Arora had probably also given him the money because it would be nearly impossible to find as honest and reliable a worker as Chandrakant. If he were forced to leave the half flat and move to another part of Delhi altogether, it would be impossible for him to continue working at Arora’s shop.