The Family Gene
Page 22
To all the members of my family who relived many sad memories in order to bring our family and illness to life in this book, especially cousins Val and Mike, Sue and Michael, Phyllis and Mark, Kenny and Joanne, Suzanne and Vinnie, Denise, Richie and Dolly, Meryl, Jeff, Rachel, Marcus, Lizzie, Danny, Abby, Jordan, Rebekah, Rachel, and to my aunts, Joanie, Enid, Kathy, and Ellen.
My love and thanks go to my dear friends Amy Huck, Jason Evege, James Babson, Lisa Switkin, Jackie and Jimmy Shulman, and Wendy Bassin for being so good when I’m falling apart—body and spirit—and for dedicating more time than they might have wanted to on this project. Thank you to Christine Monroe for being an award-winning mother-in-law and champion. Thank you and all my love to Brian, Marny, Marty, Kathy, Aunt Paula, Uncle Phil, Sarah, Debbie, Molly, David, Maribeth, Uncle Jim, Jim and Karen, and T.K. Of course, thank you to Dr. Kricket, Meredith Moore, Barbara, Jon, Suzanne, and the Seidman Lab.
Thank you to Hilary for being a lifelong cheerleader, protector, and now partner in craziness. Thank you to my nieces and nephews, Gabriel, Julia, Addison, and Billy. To my grandmother Shirley—this book would have been impossible without you. I love you, I thank you, and I miss you. To my mom, Rhoda, incalculable thanks for your outstanding PR skills and for being a bottomless, lifelong pit of love. You always knew this story had to be told.
And thank you to my love, Aaron, for just everything.
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About the Author
Joselin Linder is a writer living in Brooklyn. She is a regular contributor to the New York Post and Morning Edition, among other media outlets.
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the family gene. Copyright © 2017 by Joselin Linder. All rights reserved under International and Pan-American Copyright Conventions. By payment of the required fees, you have been granted the nonexclusive, nontransferable right to access and read the text of this e-book on-screen. No part of this text may be reproduced, transmitted, downloaded, decompiled, reverse-engineered, or stored in or introduced into any information storage and retrieval system, in any form or by any means, whether electronic or mechanical, now known or hereafter invented, without the express written permission of HarperCollins Publishers.
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* TB patients were believed to no longer be infectious after about two weeks of steady treatment and were usually released, although we now know this information was erroneous.
* Most sufferers experience their first CF symptoms in infancy, making parents like the Defords the front line in their children’s survival.
* AAV9 has become a go-to virus for gene-therapy delivery and was the planned delivery method for Eliza’s trial. Exposure would render her ineligible.